At the crossroads: making the transition to hospice
D Schulman-Green, R McCORKLE, L Curry… - Palliative & Supportive …, 2004 - cambridge.org
Objective: Previous studies reveal that many terminally ill patients never receive hospice
care. Among those who do receive hospice, many enroll very close to the time of death …
care. Among those who do receive hospice, many enroll very close to the time of death …
[HTML][HTML] Preparing for the end of life: preferences of patients, families, physicians, and other care providers
KE Steinhauser, NA Christakis, EC Clipp… - Journal of pain and …, 2001 - Elsevier
To examine patients', families', and health care providers' preferences regarding preparation
for the end of life, attributes of preparation were generated in qualitative focus group …
for the end of life, attributes of preparation were generated in qualitative focus group …
After you: conversations between patients and healthcare professionals in planning for end of life care
Background This study explores with patients, carers and health care professionals if, when
and how Advance Care Planning conversations about patients' preferences for place of care …
and how Advance Care Planning conversations about patients' preferences for place of care …
Improving support for family carers: key implications for research, policy and practice
P Hudson - Palliative medicine, 2013 - journals.sagepub.com
The aim of this editorial is to highlight several research priorities and key implications for
policy and practice that inform an agenda to improve family carer support. The development …
policy and practice that inform an agenda to improve family carer support. The development …
Anticipatory grief and experience of providing at-home palliative care among informal caregivers of spouses in Croatia: a qualitative study
J Bilić, L Skokandić, L Puljak - BMC palliative care, 2022 - Springer
Background In palliative care, caring for spouses suffering from incurable diseases can
provoke a range of reactions in informal caregivers that are part of the grieving process, as …
provoke a range of reactions in informal caregivers that are part of the grieving process, as …
The end of life and the family: hospice patients' views on dying as relational
The end of life is a highly emotive and critical period in the life course and families often play
a central role during this time. Despite significant sociological work on dying as a relational …
a central role during this time. Despite significant sociological work on dying as a relational …
Effect of caregiving at end of life on grief, quality of life and general health: a prospective, longitudinal, comparative study
LJ Breen, SM Aoun, M O'Connor… - Palliative …, 2020 - journals.sagepub.com
Background: Determining the effect of caregiving and bereavement remains a challenge. To
date, no study has employed a comparison group to investigate caregivers' grief, quality of …
date, no study has employed a comparison group to investigate caregivers' grief, quality of …
The end‐of‐life experience: Modifiable predictors of caregivers' bereavement adjustment
MM Garrido, HG Prigerson - Cancer, 2014 - Wiley Online Library
BACKGROUND The objective of the current study was to determine the best set of predictors
of psychological disorders, regrets, health‐related quality of life, and mental health function …
of psychological disorders, regrets, health‐related quality of life, and mental health function …
A systematic review of psychosocial interventions for family carers of palliative care patients
PL Hudson, C Remedios, K Thomas - BMC palliative care, 2010 - Springer
Background Being a family carer to a patient nearing the end of their life is a challenging
and confronting experience. Studies show that caregiving can have negative consequences …
and confronting experience. Studies show that caregiving can have negative consequences …
Socio-cultural contexts of end-of-life conversations and decisions: bereaved family cancer caregivers' retrospective co-constructions
JN Githaiga, L Swartz - BMC Palliative Care, 2017 - Springer
Background End-of-life communication becomes increasingly difficult in terminal cancer,
which inevitably entails conversations around dying and death. In resource-limited areas …
which inevitably entails conversations around dying and death. In resource-limited areas …