At the crossroads: making the transition to hospice

D Schulman-Green, R McCORKLE, L Curry… - Palliative & Supportive …, 2004 - cambridge.org
Objective: Previous studies reveal that many terminally ill patients never receive hospice
care. Among those who do receive hospice, many enroll very close to the time of death …

[HTML][HTML] Preparing for the end of life: preferences of patients, families, physicians, and other care providers

KE Steinhauser, NA Christakis, EC Clipp… - Journal of pain and …, 2001 - Elsevier
To examine patients', families', and health care providers' preferences regarding preparation
for the end of life, attributes of preparation were generated in qualitative focus group …

After you: conversations between patients and healthcare professionals in planning for end of life care

K Almack, K Cox, N Moghaddam, K Pollock… - BMC palliative …, 2012 - Springer
Background This study explores with patients, carers and health care professionals if, when
and how Advance Care Planning conversations about patients' preferences for place of care …

Improving support for family carers: key implications for research, policy and practice

P Hudson - Palliative medicine, 2013 - journals.sagepub.com
The aim of this editorial is to highlight several research priorities and key implications for
policy and practice that inform an agenda to improve family carer support. The development …

Anticipatory grief and experience of providing at-home palliative care among informal caregivers of spouses in Croatia: a qualitative study

J Bilić, L Skokandić, L Puljak - BMC palliative care, 2022 - Springer
Background In palliative care, caring for spouses suffering from incurable diseases can
provoke a range of reactions in informal caregivers that are part of the grieving process, as …

The end of life and the family: hospice patients' views on dying as relational

A Broom, E Kirby - Sociology of health & illness, 2013 - Wiley Online Library
The end of life is a highly emotive and critical period in the life course and families often play
a central role during this time. Despite significant sociological work on dying as a relational …

Effect of caregiving at end of life on grief, quality of life and general health: a prospective, longitudinal, comparative study

LJ Breen, SM Aoun, M O'Connor… - Palliative …, 2020 - journals.sagepub.com
Background: Determining the effect of caregiving and bereavement remains a challenge. To
date, no study has employed a comparison group to investigate caregivers' grief, quality of …

The end‐of‐life experience: Modifiable predictors of caregivers' bereavement adjustment

MM Garrido, HG Prigerson - Cancer, 2014 - Wiley Online Library
BACKGROUND The objective of the current study was to determine the best set of predictors
of psychological disorders, regrets, health‐related quality of life, and mental health function …

A systematic review of psychosocial interventions for family carers of palliative care patients

PL Hudson, C Remedios, K Thomas - BMC palliative care, 2010 - Springer
Background Being a family carer to a patient nearing the end of their life is a challenging
and confronting experience. Studies show that caregiving can have negative consequences …

Socio-cultural contexts of end-of-life conversations and decisions: bereaved family cancer caregivers' retrospective co-constructions

JN Githaiga, L Swartz - BMC Palliative Care, 2017 - Springer
Background End-of-life communication becomes increasingly difficult in terminal cancer,
which inevitably entails conversations around dying and death. In resource-limited areas …