Background: The caregivers of persons with motor neuron disease (MND) have several
needs that are usually not voiced on any platform. Aim: To explore the lived experience of …

While the experiences of family members supporting a person with a terminal illness are
well documented, less is known about the needs of carers of people with neurological …

Objective: To investigate social aspects of caregiving for people living with motor neurone
disease (MND) and examine their relationships to carers' well-being. Methods: A …

Motor Neuron Disease (MND) leads to significant psychosocial distress for the person with
the illness and caregivers. Psychosocial factors influence the management and quality of life …

Aims and objectives: To explore reflections of family caregivers and health professionals
regarding the challenges involved in caring for persons with amyotrophic lateral sclerosis …

Aim and objectives. This paper aims to add to nurses' knowledge concerning the losses and
emotional labour family caregivers face caring for people living with neurodegenerative, life …

Background: Family caregivers of people with motor neurone disease (MND) experience
adverse health outcomes as a result of their caregiving experience. This may be alleviated if …

Most research on partners' experiences of living with a person with MND is questionnaire-
based with no qualitative study focusing on the period between diagnosis and end-of-life …

Purpose: Family carers provide the majority of home-based care for people with motor
neurone disease (MND). Carers' need for, and use of, support services are not fully …

Aim: The objective was to explore the lived experience of spouses of persons diagnosed
with MND. Methods: A qualitative exploratory study with three-point interviews was …