[HTML][HTML] Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - Research involvement and engagement, 2017 - Springer
Plain English summary Patients with rare diseases often help to develop new treatments for
their conditions. But once developed, those treatments are sometimes priced too high for …

[PDF][PDF] Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - 2017 - pure.ed.ac.uk
Since the enactment of orphan drug legislation in the USA, Europe and several other
countries, an increasing number of treatments for rare diseases have been developed and …

[HTML][HTML] Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - Research Involvement and …, 2017 - researchinvolvement.biomedcentral …
Patients with rare diseases often help to develop new treatments for their conditions. But
once developed, those treatments are sometimes priced too high for many patients to …

Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - Research involvement and …, 2017 - pubmed.ncbi.nlm.nih.gov
Plain english summary Patients with rare diseases often help to develop new treatments for
their conditions. But once developed, those treatments are sometimes priced too high for …

[PDF][PDF] Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - 2017 - researchgate.net
Since the enactment of orphan drug legislation in the USA, Europe and several other
countries, an increasing number of treatments for rare diseases have been developed and …

Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - Research Involvement and Engagement, 2017 - infona.pl
Plain English summary Patients with rare diseases often help to develop new treatments for
their conditions. But once developed, those treatments are sometimes priced too high for …

Patient organization involvement and the challenge of securing access to treatments for rare diseases: Report of a policy engagement workshop

K Mikami, S Sturdy - Research Involvement and Engagement, 2017 - keio.elsevierpure.com
抄録 Since the enactment of orphan drug legislation in the USA, Europe and several other
countries, an increasing number of treatments for rare diseases have been developed and …

[HTML][HTML] Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - Research Involvement and Engagement, 2017 - ncbi.nlm.nih.gov
Since the enactment of orphan drug legislation in the USA, Europe and several other
countries, an increasing number of treatments for rare diseases have been developed and …

Patient organization involvement and the challenge of securing access to treatments for rare diseases: Report of a policy engagement workshop

S Sturdy, K Mikami - Research Involvement and Engagement, 2017 - research.ed.ac.uk
Since the enactment of orphan drug legislation in the USA, Europe and several other
countries, an increasing number of treatments for rare diseases have been developed and …

Patient organization involvement and the challenge of securing access to treatments for rare diseases: report of a policy engagement workshop

K Mikami, S Sturdy - Research Involvement and Engagement, 2017 - go.gale.com
Plain English summary Patients with rare diseases often help to develop new treatments for
their conditions. But once developed, those treatments are sometimes priced too high for …