Emerging roles and opportunities for rare disease patient advocacy groups

AM Patterson, M O'Boyle… - … Advances in Rare …, 2023 - journals.sagepub.com
Background: Patient advocacy groups (PAGs) serve a vital role for rare disease patients and
families by providing educational resources, support, and a sense of community. Motivated …
被引用次数：9 相关文章
[PDF] rsztnc.org

[PDF][PDF] Emerging roles and opportunities for rare disease patient advocacy groups

AM Patterson, M O'Boyle, GE VanNoy, KA Dies - 2023 - rsztnc.org
Abstract Background: Patient advocacy groups (PAGs) serve a vital role for rare disease
patients and families by providing educational resources, support, and a sense of …
[HTML] nih.gov

[HTML][HTML] Emerging roles and opportunities for rare disease patient advocacy groups

AM Patterson, M O'Boyle, GE VanNoy… - Therapeutic Advances in …, 2023 - ncbi.nlm.nih.gov
Background: Patient advocacy groups (PAGs) serve a vital role for rare disease patients and
families by providing educational resources, support, and a sense of community. Motivated …

Emerging roles and opportunities for rare disease patient advocacy groups

AM Patterson, M O'Boyle… - … advances in rare …, 2023 - pubmed.ncbi.nlm.nih.gov
Background Patient advocacy groups (PAGs) serve a vital role for rare disease patients and
families by providing educational resources, support, and a sense of community. Motivated …

Emerging roles and opportunities for rare disease patient advocacy groups.

AM Patterson, M O'Boyle, GE VanNoy… - Therapeutic Advances in …, 2023 - europepmc.org
Background Patient advocacy groups (PAGs) serve a vital role for rare disease patients and
families by providing educational resources, support, and a sense of community. Motivated …
[PDF] semanticscholar.org

[PDF][PDF] Emerging roles and opportunities for rare disease patient advocacy groups

AM Patterson, M O'Boyle, GE VanNoy, KA Dies - 2023 - pdfs.semanticscholar.org
Abstract Background: Patient advocacy groups (PAGs) serve a vital role for rare disease
patients and families by providing educational resources, support, and a sense of …

Emerging roles and opportunities for rare disease patient advocacy groups.

AM Patterson, M O'Boyle, GE VanNoy… - Therapeutic Advances in …, 2023 - europepmc.org
Background Patient advocacy groups (PAGs) serve a vital role for rare disease patients and
families by providing educational resources, support, and a sense of community. Motivated …