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[HTML][HTML] Establishing patient registries for rare diseases: rationale and challenges

V Boulanger, M Schlemmer, S Rossov… - Pharmaceutical …, 2020 - Springer
Globally, an estimated 350 million people are affected by a rare disease diagnosis.
Knowledge limitations persist for the majority of rare conditions due to systemic and …
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Establishing Patient Registries for Rare Diseases: Rationale and Challenges.

V Boulanger, M Schlemmer, S Rossov… - Pharmaceutical …, 2020 - europepmc.org
Globally, an estimated 350 million people are affected by a rare disease diagnosis.
Knowledge limitations persist for the majority of rare conditions due to systemic and …
[HTML] nih.gov

[HTML][HTML] Establishing Patient Registries for Rare Diseases: Rationale and Challenges

V Boulanger, M Schlemmer, S Rossov… - Pharmaceutical …, 2020 - ncbi.nlm.nih.gov
Globally, an estimated 350 million people are affected by a rare disease diagnosis.
Knowledge limitations persist for the majority of rare conditions due to systemic and …

Establishing Patient Registries for Rare Diseases: Rationale and Challenges

V Boulanger, M Schlemmer, S Rossov… - Pharmaceutical …, 2020 - search.proquest.com
Globally, an estimated 350 million people are affected by a rare disease diagnosis.
Knowledge limitations persist for the majority of rare conditions due to systemic and …

Establishing Patient Registries for Rare Diseases: Rationale and Challenges

V Boulanger, M Schlemmer… - Pharmaceutical …, 2020 - pubmed.ncbi.nlm.nih.gov
Globally, an estimated 350 million people are affected by a rare disease diagnosis.
Knowledge limitations persist for the majority of rare conditions due to systemic and …