Precision medicine and advancing genetic technologies—Disability and human rights perspectives

A De Paor, P Blanck - Laws, 2016 - mdpi.com
… In consideration of the intersection of genetics and disability, … They also arguably facilitate
greater patient autonomy and … which to view (to identify, as well as eradicate) disability [36]. …

[PDF][PDF] The invisible child of personalized medicine

K Ó Cathaoir - Journal of Law and the Biosciences, 2021 - academic.oup.com
… ’s genetic data, focusing instead on adult patient autonomy.… clinical genetics departments
were interviewed with a view to … , even geneticists who strongly defended child autonomy

Review of policy, law and ethics

K Petrogiannis, T Tymstra, P Jallinoja, E Ettorre - Before Birth, 2017 - taylorfrancis.com
… state of the art in each country and second, we will … on genetics. The select and expert,
statutory committees express rather bland views in their reports about respect for patient autonomy

European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

F Fellmann, CG Van El, P Charron, K Michaud… - … of human genetics, 2019 - nature.com
country [2, 10, 15]. A SUD most often will be investigated using forensic procedures, focused
on ascertaining whether the cause of death is … cardiac pathological opinion is apparent, as …

Navigating assisted reproduction treatment in the time of COVID-19: concerns and considerations

M Simopoulou, K Sfakianoudis, P Giannelou… - … and Genetics, 2020 - Springer
… To promote patient autonomy along with our ethical, moral, … to future reconsiderations and
modifications [36]. Nonetheless, … “authority body” may vary from country to country, as it may be …

[图书][B] Is vulnerability the foundation of human rights?

R Andorno - 2016 - Springer
… These laws, which emphasize the value of patient autonomy, … of rights merely existed at the
country-specific level. Despite the … In other words, genetics should not become the instrument …

Ethical issues in genetic modification and why application matters

M Munsie, C Gyngell - Current Opinion in Genetics & Development, 2018 - Elsevier
Nations Educational Scientific and Cultural Organization … [32], we have elected in this review
to focus on three future … by hurting their relationships with their children [36]; harm society by …

The law of genetic privacy: applications, implications, and limitations

EW Clayton, BJ Evans, JW Hazel… - Journal of Law and the …, 2019 - academic.oup.com
… policy perspective, advocates and elected officials often have … widely criticized as violating
patient autonomy and clinician … of Human Genetics stated that disclosure is appropriate in …

Patient perspectives on noninvasive prenatal testing among black women in the United States: a scoping review

SP Thomas, MA Keller, T Ranson… - BMC Pregnancy and …, 2023 - Springer
… ,20,21,22, 29, 35, 36]. Across these articles, NIPT was perceived … researchers have neglected
to view genetics conditions as a … reproductive autonomy in the social world [48]. Examining …

Implementation of precision medicine in Healthcare—A European perspective

A Stenzinger, EK Moltzen, E Winkler… - Journal of Internal …, 2023 - Wiley Online Library
… how the data can be processed [36]. In this way, trustworthy and … broadly into healthcare
equally across the country. It … from diverse fields, such as genetics, bioinformatics and clinical …