Precision medicine and advancing genetic technologies—Disability and human rights perspectives
… In consideration of the intersection of genetics and disability, … They also arguably facilitate
greater patient autonomy and … which to view (to identify, as well as eradicate) disability [36]. …
greater patient autonomy and … which to view (to identify, as well as eradicate) disability [36]. …
[PDF][PDF] The invisible child of personalized medicine
K Ó Cathaoir - Journal of Law and the Biosciences, 2021 - academic.oup.com
… ’s genetic data, focusing instead on adult patient autonomy.… clinical genetics departments
were interviewed with a view to … , even geneticists who strongly defended child autonomy …
were interviewed with a view to … , even geneticists who strongly defended child autonomy …
Review of policy, law and ethics
K Petrogiannis, T Tymstra, P Jallinoja, E Ettorre - Before Birth, 2017 - taylorfrancis.com
… state of the art in each country and second, we will … on genetics. The select and expert,
statutory committees express rather bland views in their reports about respect for patient autonomy…
statutory committees express rather bland views in their reports about respect for patient autonomy…
European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death
F Fellmann, CG Van El, P Charron, K Michaud… - … of human genetics, 2019 - nature.com
… country [2, 10, 15]. A SUD most often will be investigated using forensic procedures, focused
on ascertaining whether the cause of death is … cardiac pathological opinion is apparent, as …
on ascertaining whether the cause of death is … cardiac pathological opinion is apparent, as …
Navigating assisted reproduction treatment in the time of COVID-19: concerns and considerations
M Simopoulou, K Sfakianoudis, P Giannelou… - … and Genetics, 2020 - Springer
… To promote patient autonomy along with our ethical, moral, … to future reconsiderations and
modifications [36]. Nonetheless, … “authority body” may vary from country to country, as it may be …
modifications [36]. Nonetheless, … “authority body” may vary from country to country, as it may be …
[图书][B] Is vulnerability the foundation of human rights?
R Andorno - 2016 - Springer
… These laws, which emphasize the value of patient autonomy, … of rights merely existed at the
country-specific level. Despite the … In other words, genetics should not become the instrument …
country-specific level. Despite the … In other words, genetics should not become the instrument …
Ethical issues in genetic modification and why application matters
… Nations Educational Scientific and Cultural Organization … [32], we have elected in this review
to focus on three future … by hurting their relationships with their children [36]; harm society by …
to focus on three future … by hurting their relationships with their children [36]; harm society by …
The law of genetic privacy: applications, implications, and limitations
EW Clayton, BJ Evans, JW Hazel… - Journal of Law and the …, 2019 - academic.oup.com
… policy perspective, advocates and elected officials often have … widely criticized as violating
patient autonomy and clinician … of Human Genetics stated that disclosure is appropriate in …
patient autonomy and clinician … of Human Genetics stated that disclosure is appropriate in …
Patient perspectives on noninvasive prenatal testing among black women in the United States: a scoping review
SP Thomas, MA Keller, T Ranson… - BMC Pregnancy and …, 2023 - Springer
… ,20,21,22, 29, 35, 36]. Across these articles, NIPT was perceived … researchers have neglected
to view genetics conditions as a … reproductive autonomy in the social world [48]. Examining …
to view genetics conditions as a … reproductive autonomy in the social world [48]. Examining …
Implementation of precision medicine in Healthcare—A European perspective
A Stenzinger, EK Moltzen, E Winkler… - Journal of Internal …, 2023 - Wiley Online Library
… how the data can be processed [36]. In this way, trustworthy and … broadly into healthcare
equally across the country. It … from diverse fields, such as genetics, bioinformatics and clinical …
equally across the country. It … from diverse fields, such as genetics, bioinformatics and clinical …