[PDF][PDF] Continuity, coping and finding meanings in everyday life: Storytelling by family members of people with young onset dementia

K Hautsalo, J Pirhonen, I Pietilä - 2023 - trepo.tuni.fi
… was collected in Finland by conducting interviews with 16 family members of people with
YOD … Family carers for people with memory disorders in the service system (includes English …

Reverse Journey in Dementia: a Clinician's Research Journey Leading to the Development of Carers' Diaries

D Jayalath - 2017 - uhra.herts.ac.uk
… The devotion and love shown by family carers to … diary studies with carers were identified
at the time of study that focussed on identifying and recording problems in dementia patients or …

Effects of self‐management groups for people with dementia and their spouses—Randomized controlled trial

ML Laakkonen, H Kautiainen, E Hölttä… - Journal of the …, 2016 - Wiley Online Library
… The study nurses interviewed the couple over the telephone to ensure that they fulfilled the
inclusion criteria (volunteers, dementia diagnosis, Finnish-speaking, spouses livingdisease). …

[HTML][HTML] Carers' diaries in dementia: Is there a role in clinical practice?

D Jayalath, K Ashaye, L Kvavilashvili - Alzheimer's & Dementia: Diagnosis …, 2016 - Elsevier
… this study was to compare problems identified using diaries kept by family carers for a week
with carers' … In another diary study to examine relationship between caregiver-burden, leisure …

The family's experience and perception of phases and roles in the progression of dementia: An explorative, interview-based study

TH Clemmensen, LM Busted, J Søborg, P Bruun - Dementia, 2019 - journals.sagepub.com
Alzheimer’s Disease International, 2012). The aim of this study was to examine how family
members experience the challenges of everyday life throughout the progression of dementia

[HTML][HTML] Mood, lifestyle and cardiovascular risk factors among older caregivers of patients with Alzheimer's disease dementia: a case–control study

TR Madaleno, JC Moriguti, E Ferriolli… - … experimental research, 2019 - Springer
Family caregivers of persons with Alzheimer’s dementia face several challenges such as
the constant need to provide care, the management of behavioral symptoms, the lack of time …

CareACT-internet-based intervention for enhancing the psychological well-being of elderly caregivers–a study protocol of a controlled trial

P Lappalainen, I Pakkala, R Nikander - BMC geriatrics, 2019 - Springer
… This study examines the relative effectiveness of an internet-based … study, the institutional
rehabilitation program represents the usual care available to family caregivers in Finland

An occupational perspective of the lived experience of familial dementia caregivers: a thematic review of qualitative literature

EK Hooper, T Collins - Dementia, 2019 - journals.sagepub.com
… – qualitative content analysis Describing family caregiverslife orientation during the first
year after diagnosis of Alzheimer’s disease n = 83 Spouse (64), Son/daughter (15), Son/…

The experiences of family caregivers in response to a dementia diagnosis disclosure

MC Chen, HR Lin - BMC psychiatry, 2022 - Springer
… this study were family caregivers of persons with dementia who were willing to share their
true experiences regarding the effects of the disclosure of a dementia diagnosis on their lives. …

BPSDiary study protocol: a multi-center randomized controlled trial to compare the efficacy of a BPSD diary vs. standard care in reducing caregiver's burden

FE Pozzi, L Calì, F D'Antonio, AI Altomare… - … in Dementia, 2023 - frontiersin.org
persons with dementia (PwD), significantly impacting their quality of life and that of their
caregivers… This study aims to overcome this limitation by making caregiver reports more objective …