… to a support group were more likely support group participants [20]. Therefore, health
professionals ought to get better acquainted with the topic of social media support groups if they …

… gain insight from patient groups that support children with IEM … informing patient-centered
health care and support services … (2013) The role of patient advocacy/parent support groups. S …

… (1) As neonatologists, we advocate for patients every day in the clinical care we provide;
however, there is an urgent need for us to move beyond problem-solving for individual patients …

… ’s role includes building up the skills of the members of the group and supporting the group
in … Self-help groups in Japan: historical development and current issues. International Journal …

… Once enrollment was open, Individual SMA advocacy parent blog sites were notified about
the study and circulated study materials. We encouraged advocacy groups to use their blogs …

… analysis of focus group and single interviews with IT-IEM patients and their … patients
and (2) to investigate differences in statement frequencies of topics related to the informant (patient …

… a role in explaining these service disparities. As such, increasing parent-professional
partnerships through family-centered care and professional training may help to reduce service …

… safe spaces to host anti-bullying campaigns, parent support groups, and events. Social
Service Organizations Social service organizations such as the YMCA and the Boys and Girls …

… ,” or “Disease Advocacy Organizations.” For the purpose of this survey, we will use the
acronym “DAO” throughout to refer to all advocacy groups in general. …

… Supporting Organizations There are numerous international, national and local support groups
… often look to nonprofit support organizations and advocacy groups to understand how the …