Development of a high school-based executive function intervention for transition-age autistic youth: Leveraging multi-level community partnerships
CE Pugliese, MA Werner, KC Alexander, L Cannon… - School Mental …, 2024 - Springer
Every year, an increasing number of autistic youth enter a complex and underfunded adult
service system after graduating from high school. Executive function (EF) challenges …
service system after graduating from high school. Executive function (EF) challenges …
Improving neurodevelopmental outcomes in children with congenital heart disease: protocol for a randomised controlled trial of working memory training
J Calderon, DC Bellinger, C Hartigan, A Lord… - BMJ open, 2019 - bmjopen.bmj.com
… Flyers and study brochures are displayed in Boston Children’s Hospital Cardiology Clinic
and affiliated medical centres as well as in some local advocacy parent organisations. …
and affiliated medical centres as well as in some local advocacy parent organisations. …
Family engagement in child welfare system-level change: A review of current models
A Augsberger, ME Collins, BF Levine - Families in Society, 2023 - journals.sagepub.com
… Since the passage of the CAPTA in the 1970s, the child protective service functions began
to overwhelm the child welfare system. CAPTA had the effect of many more children and …
to overwhelm the child welfare system. CAPTA had the effect of many more children and …
The parental experience of caring for a child with pain and irritability of unknown origin
S Rizakos, A Parmar, HH Siden, J Orkin - Journal of Pain and Symptom …, 2022 - Elsevier
… found support from online groups, consistent with literature looking at positive impacts of
online support groups … Advocacy Parent advocating for the health and well-being of their child …
online support groups … Advocacy Parent advocating for the health and well-being of their child …
An administrators' association partnership translates to gifted education advocacy
A Robinson - Gifted Child Today, 2021 - journals.sagepub.com
A formal partnership between a state-level umbrella association of educational administrators
and one of its constituent associations, the association of gifted education administrators, …
and one of its constituent associations, the association of gifted education administrators, …
Development of 4to24, a Transition Application for Parents of Students With Visual Impairments
K Antonelli, JL Cmar… - Journal of Visual …, 2021 - journals.sagepub.com
Introduction This article focuses on the development of 4to24, an informational app for
parents of students with visual impairments, with emphasis on obtaining stakeholder input, …
parents of students with visual impairments, with emphasis on obtaining stakeholder input, …
Retracing the historical social care context of autism: A narrative overview
… In this paper, the social context includes the social care and support that could be potentially
provided, received or needed by individuals with autism or their carers. Social care covers a …
provided, received or needed by individuals with autism or their carers. Social care covers a …
Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups
… We developed a sampling frame of eligible patient groups using suggestions from study
investigators, the Canadian Directory of Genetic Support Groups (Canadian Association of …
investigators, the Canadian Directory of Genetic Support Groups (Canadian Association of …
Why is misdiagnosis more likely among some people with rare diseases than others? Insights from a population-based cross-sectional study in China
D Dong, RYN Chung, RHW Chan, S Gong… - Orphanet journal of rare …, 2020 - Springer
… and help patients connect with each other [25]. Moreover, Groft suggested that general support
groups could … For patients with extremely rare diseases, POs also help disseminate useful …
groups could … For patients with extremely rare diseases, POs also help disseminate useful …
[PDF][PDF] Advocacy in Everyday Life: The Role of Information Literacy Skills
P Nzomo, P Fehrmann - The Sixth European Conference on Information … - academia.edu
… the role that information literacy plays in advocacy. The paper examines what role information
… self-advocacy, social advocacy, patient advocacy, parent advocacy, and policy advocacy. …
… self-advocacy, social advocacy, patient advocacy, parent advocacy, and policy advocacy. …