[HTML][HTML] Views of people living with dementia and their carers on their present and future: a qualitative study

D Nimmons, J Manthorpe, E West, G Rait… - BMC Palliative Care, 2023 - Springer
Background Dementia leads to multiple issues including difficulty in communication and
increased need for care and support. Discussions about the future often happen late or …

What is important at the end of life for people with dementia? The views of people with dementia and their carers

SR Hill, H Mason, M Poole, L Vale… - … Journal of Geriatric …, 2017 - Wiley Online Library
Background Approaching end of life is often a time of vulnerability; this is particularly so for
people with dementia and their families where loss of capacity and the ability to …

The perspectives of people with dementia on their future, end of life and on being cared for by others: A qualitative study

SR Bolt, JT van der Steen, C Khemai… - Journal of clinical …, 2022 - Wiley Online Library
Aims and objectives To explore the perspectives of people with dementia on being cared for
by others, on the future and on the end of life, and to evaluate the capability and willingness …

[HTML][HTML] Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods

KJ Moore, S Davis, A Gola, J Harrington, N Kupeli… - BMC geriatrics, 2017 - Springer
Background Many studies have examined the mental health of carers of people with
dementia. Few have examined their experiences in the advanced stages of disease and into …

The key factors for the engagement of primary stakeholders in decision-making for the future care of people with dementia living in the community: a systematic …

M Lai, YH Jeon, H McKenzie - International Psychogeriatrics, 2019 - cambridge.org
Background: Engagement of people with dementia who are living in the community, their
family or carers, and healthcare professionals in decision-making related to their future care …

Providing care for a person with late-stage dementia at home: What are carers' experiences?

L Dempsey, M Dowling, P Larkin, K Murphy - Dementia, 2020 - journals.sagepub.com
Background It is widely reported that carers who provide care for a family member with
dementia endure physical and psychological burdens. Not only do they fulfil an important …

Palliative care for dementia—time to think again?

J Crowther, KCM Wilson, S Horton… - QJM: An International …, 2013 - academic.oup.com
It is estimated that there are 35.6 million people with dementia worldwide and this is
projected to increase to over 115 million by the year 2050. Dementia is a progressive …

The facilitators and challenges of dying at home with dementia: a narrative synthesis

C Mogan, M Lloyd-Williams… - Palliative …, 2018 - journals.sagepub.com
Background: It is reported that, given the right support, most people would prefer to die at
home, yet a very small minority of people with dementia do so. At present, knowledge gaps …

Experiences and expectations of living with dementia: A qualitative study

ST Read, C Toye, D Wynaden - Collegian, 2017 - Elsevier
Background There is a paucity of literature detailing the expectations that people with
dementia have for the future; therefore the capacity to reflect their views in service provision …

[HTML][HTML] “I just keep thinking that I don't want to rely on people.” a qualitative study of how people living with dementia achieve and maintain independence at home …

P Rapaport, A Burton, M Leverton, R Herat-Gunaratne… - BMC geriatrics, 2020 - Springer
Background Most people living with dementia want to remain in their own homes, supported
by family and paid carers. Care at home often breaks down, necessitating transition to a care …