Population data science [1] researchers are not alone in recognizing the value of health and
health-related data. In the era of big data, and with advent of machine learning and other …

This paper has three parts. The first part describes developments in the use of personal
information for health research in Canada, challenges in responding to new data protection …

In Canada, health information networks are being developed in every province to enhance
patient care and manage an increasingly complex health care system. Researchers and …

Concern for privacy and confidentiality is a strategic barrier to the use of personal
information for expanded Canadian health research and statistics, more effective services …

IntroduCtIon There has been significant effort in linking different electronic datasets within
healthcare and between health and social care, 1–6 both for research purposes and for …

The discussion about the European regime for processing personal data is entering a new
phase. After the European Commission had proposed a new General Data Protection …

Introduction Sharing of health data for secondary uses such as research and public policy
development is common. There are many potential benefits, but also risks if information …

Abstract Population Data BC (PopData) is an innovative leader in facilitating access to
linked data for population health research. Researchers from academic institutions across …

Objectives: This study sought to determine public opinion on alternatives to project-specific
consent for use of their personal information for health research. Design: The authors …

The obligation to maintain the privacy of patients and research participants is foundational to
biomedical research. But there is growing concern about the challenges of keeping …