[图书][B] Wellness in the midst of disease: a narrative analysis of growing up with rheumatic conditions

CK Wells - 2015 - search.proquest.com
Rheumatic diseases affect approximately 300,000 US children and cause inflammation of
cartilage, bones, connective tissues, and internal organs. More than half of these children …

[PDF][PDF] Working to manage chronic illness in daily life

A Townsend - Occup Ther Now, 2011 - researchgate.net
Self-management of chronic illness extends beyond managing disease to managing the
impact of symptoms on everything we do (our occupations) and daily life. Selfmanagement …

Belonging, happiness, freedom and empowerment—a qualitative study of patients' understanding of health in early rheumatoid arthritis

E Landgren, E Mogard, A Bremander, E Lindqvist… - BMC rheumatology, 2024 - Springer
Background Rheumatoid arthritis (RA) is a chronic, systemic, inflammatory joint disease, that
influences patients' health in different ways, including physical, social, emotional, and …

Designing and delivering facilitated storytelling interventions for chronic disease self-management: a scoping review

E Gucciardi, N Jean-Pierre, G Karam… - BMC Health Services …, 2016 - Springer
Background Little is known about how to develop and deliver storytelling as an intervention
to support those managing chronic illnesses. This scoping review aims to describe the core …

[PDF][PDF] Digitally enabled chronic disease self-management: Embodiment of digital artifacts in JIA patients' everyday life

KS Vinther - 2020 - pure.au.dk
Mark, Robert's father, and I are standing beside a soccer field, watching Robert play soccer
with 12 other boys. A coach is yelling encouraging commands to all of them, such as “Well …

The invisible reality of arthritis: a qualitative analysis of an online message board

A Hadert, K Rodham - Musculoskeletal Care, 2008 - Wiley Online Library
Background and aim: Living with a chronic illness, such as arthritis, creates many
psychosocial stressors, which can be difficult to cope with. Exploring the interactions which …

I have mastered the challenge of living with a chronic disease: life stories of people with rheumatoid arthritis

T Stamm, L Lovelock, G Stew, V Nell… - Qualitative Health …, 2008 - journals.sagepub.com
Our aim with this study was to explore the narrative life story of individuals diagnosed with
rheumatoid arthritis. An open qualitative approach, namely narrative biographic …

Illness narratives and Facebook: Living illness well

K Hinson, B Sword - Humanities, 2019 - mdpi.com
Earlier scholarship provides important insights into the relationship of individual stories and
narratives. Interactions with healthcare professionals and the healthcare system can often …

Group-based storytelling in disease self-management among people with diabetes

E Gucciardi, E Reynolds, G Karam… - Chronic …, 2021 - journals.sagepub.com
Objective We explored the underlying mechanisms by which storytelling can promote
disease self-management among people with type 2 diabetes. Methods Two, eight-session …

Experiences of self‐care during the COVID‐19 pandemic among individuals with rheumatoid arthritis: A qualitative study

J Leese, CL Backman, JK Ma, C Koehn… - Health …, 2022 - Wiley Online Library
Objectives This study aimed to explore the impact of the coronavirus disease 2019 (COVID‐
19) pandemic on self‐care of individuals living with rheumatoid arthritis (RA). Methods …