Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox

EM Oehrlein, S Schoch, K Majercak… - The Patient-Patient …, 2024 - Springer
Background Stakeholders increasingly expect research and care delivery to be guided by
and to optimize patient experiences. However, standardized tools to engage patients to …

Photovoice in mental illness research: A review and recommendations

CS Han, JL Oliffe - Health:, 2016 - journals.sagepub.com
In the past few decades, photovoice research has gained prominence, providing context rich
insights through participants' photographs and narratives. Emergent within the field of …

Managing 'difficult emotions' and family life: exploring insights and social support within online self-management training

C Sanders, A Rogers, C Gardner… - Chronic …, 2011 - journals.sagepub.com
Background: Previous research has demonstrated how the Internet can foster emotional
support and provide a 'private'space for discussing sensitive issues. Whilst the family has …

" Unmasked to a Positive Triumph": Women With HIV Share the Benefits of Showing Their Faces Through Photovoice

T Kennedy, M Teti, D Hayes, LC Pichon… - Progress in community …, 2016 - muse.jhu.edu
Background: The human immunodeficiency virus (HIV) and AIDS continue to affect the
quality of life for minority and low-income women at alarming rates. As a result, research …

'But you don't look sick': a qualitative analysis of the LUPUS UK online forum

M Sloan, M Bosley, M Blane, L Holloway… - Rheumatology …, 2021 - Springer
Lupus is a multi-system autoimmune rheumatic disease with increased morbidity and
mortality. Some manifestations are life-threatening with many aspects of living with the …

Person-centred care in rheumatology nursing in patients undergoing biological therapy: An explorative and interventional study

I Larsson - 2013 - diva-portal.org
Aim: The overall aim was to explore and evaluate rheumatology nursing from a person-
centred care perspective in patients undergoing biological therapy. Methods: This thesis …

Uncovering social issues through photovoice: A comprehensive methodology

M Kile - HERD: Health Environments Research & Design …, 2022 - journals.sagepub.com
Photovoice is a form of participatory action research and community-based participatory
research and often used in social sciences to understand the needs of others and uncover …

Making lemonade out of life's lemons: A view into the world of aging with Parkinson's disease

DB Greer, M Hermanns… - Journal of Psychosocial …, 2015 - journals.healio.com
Pictures can aid in understanding individual perspectives of an experience. Photovoice, a
visual elicitation research approach, was used to engage nine participants with Parkinson's …

New roads paved on losses: Photovoice perspectives about recovery from mental illness

L Mizock, Z Russinova, R Shani - Qualitative health …, 2014 - journals.sagepub.com
People with serious mental illness face stigma that interferes with recovery. Photovoice is a
method that integrates photography and writing, providing a valuable means for capturing …

Physical activity in patients with rheumatoid arthritis-an agile lifelong behaviour: a qualitative meta-synthesis

E Swärdh, C Opava, N Brodin - RMD open, 2021 - rmdopen.bmj.com
Background Physical activity (PA) in rheumatoid arthritis (RA) is considered a cornerstone in
the treatment. To highlight aspects involved in supporting a positive PA behaviour, it is …