The meaning of autonomy when living with dementia: A Q-method investigation

SE Wolfe, B Greenhill, S Butchard, J Day - Dementia, 2021 - journals.sagepub.com
Background and Aims Sensitivity to the rights of people with dementia is a key principle cited
in the World Health Organisation's global action plan on dementia. Some critics question …

Practising social citizenship in a context of compromised decision-making capacity: Realizing and protecting human rights

D O'Connor - Elder L. Rev., 2019 - HeinOnline
Abstract The UN Convention of Rights of Persons with Disabilities has provided a strong
foundation for asserting a rights-based approach to practice for people with disabilities but …

Dementia as a disability: Implications for ethics, policy and practice

DM Gove, J Andrews, A Capstick, C Geoghegan… - 2017 - bradscholars.brad.ac.uk
People experience dementia in different ways, not just in terms of the type and severity of
symptoms, but also in terms of how they react to and manage living with dementia …

“I just keep thinking that I don't want to rely on people.” a qualitative study of how people living with dementia achieve and maintain independence at home …

P Rapaport, A Burton, M Leverton, R Herat-Gunaratne… - BMC geriatrics, 2020 - Springer
Background Most people living with dementia want to remain in their own homes, supported
by family and paid carers. Care at home often breaks down, necessitating transition to a care …

Citizenship in-and-as-practice: A framework for improving life with dementia

AC Nedlund, R Bartlett - Living with Dementia; Hydén, L.-C …, 2017 - books.google.com
Utilising a citizenship perspective in order to study and problematise situations for people
living with dementia has received increasing attention during the last decade. A significant …

Dementia and dignity of identity: A qualitative evidence synthesis

CE Cruise, BM Lashewicz - Dementia, 2022 - journals.sagepub.com
In the late stages of dementia, individuals rely on others for their wellbeing and this creates
an ethical imperative for responsive dementia care. Through a qualitative evidence …

Ethical issues in dementia care research

H Bartlett, W Martin, H Wilkinson - The perspectives of people …, 2002 - books.google.com
Research into the health and social aspects of dementia is increasing as the number of
people with dementia in the UK continues to rise. As the predominant medical discourses …

[HTML][HTML] “A real bucket of worms”: Views of people living with dementia and family members on supported decision-making

C Sinclair, K Gersbach, M Hogan, M Blake… - Journal of Bioethical …, 2019 - Springer
Supported decision-making has been promoted at a policy level and within international
human rights treaties as a way of ensuring that people with disabilities enjoy the right to …

Professionals' views and experiences in supporting decision-making involvement for people living with dementia

C Sinclair, J Bajic-Smith, M Gresham, M Blake… - …, 2021 - journals.sagepub.com
Background The provision of supported decision-making for people living with disabilities is
an emerging area of practice and rights-based law reform, and is required under …

Equity of people with dementia in research, why does this issue remain?

J Brooke - Journal of Clinical Nursing, 2019 - open-access.bcu.ac.uk
Research in dementia has moved beyond the question of how, why and should people with
dementia be participants, to the question of how to collaborate with people with dementia in …