Care by a Caregiver: The Use of Self in Research

JC Hughes - Reflections: Narratives of …, 2016 -  …
This narrative reflective paper discusses a qualitative research study on multiple sclerosis
(MS) caregiving in which the author/researcher utilized her own caregiving experiences and …

The experience of spousal carers of people with multiple sclerosis

J Cheung, P Hocking - Qualitative Health Research, 2004 - journals.sagepub.com
This phenomenological-interpretative inquiry explores spousal carers' experience of caring
for their partner while confronting many apparent losses. Ten spousal carers of people with …

Caring as worrying: the experience of spousal carers

J Cheung, P Hocking - Journal of advanced nursing, 2004 - Wiley Online Library
Background. With the emerging focus on home‐based care, there is an increasing demand
on spouses to look after their chronically ill partners at home. The theoretical aspects of …

Opportunities in multiple sclerosis care partner research: an interview

M Finlayson, K Pakenham - International Journal of MS …, 2023 - meridian.allenpress.com
INTRODUCTION Guest editor Marcia Finlayson, PhD, OT Reg (Ont), OTR, is a professor in
the School of Rehabilitation Therapy at Queen's University in Ontario, Canada. She began …

Informal carers' experiences of caring for someone with Multiple Sclerosis: A photovoice investigation

G Topcu, H Buchanan, A Aubeeluck… - British journal of health …, 2021 - Wiley Online Library
Objectives This study explores the lived experiences of carers of people with Multiple
Sclerosis (MS), specifically in relation to their quality of life (QoL), through the use of images …

The caregiver's memoir: A new look at family support

A Burack-Weiss - Social Work, 1995 - academic.oup.com
The dominant professional paradigm, that family caregiving equals stress, is reductive.
Memoirs written by people who have cared for severely ill and disabled parents, mates, and …

Social Construction of Gender: Stories of Multiple Sclerosis Care.

JC Hughes - Journal of Ethnographic & Qualitative Research, 2016 - search.ebscohost.com
This qualitative research explored the caregiving dynamics of patients and caregivers of
multiple sclerosis (MS) to see if gender affected the caregiving experience. The purpose was …

The experiences of support persons of people newly diagnosed with multiple sclerosis: an interpretative phenomenological study

K Strickland, A Worth, C Kennedy - Journal of advanced nursing, 2015 - Wiley Online Library
Aim This study explores the experience of the diagnosis of Multiple Sclerosis for the support
person and identifies the impact on their lives. Background At the time of diagnosis, the …

[图书][B] Defining and managing family caregiving in chronic illness: Expectations, explanations, and strategies

L Ayres - 1998 - search.proquest.com
This study used narrative inquiry, based on reader-response theory, to investigate the
experience of family caregiving in both physical and cognitive illness and disability. A …

Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research

G Topcu, H Buchanan, A Aubeeluck… - Psychology & Health, 2016 - Taylor & Francis
Objective: The lack of adequate conceptualisation and operationalisation of quality of life
(QoL) limits the ability to have a consistent body of evidence to improve QoL research and …