Patient expertise: contested territory in the realm of long-term condition care

H Francis, J Carryer, J Wilkinson - Chronic Illness, 2019 - journals.sagepub.com
… The aim of this study was to describe the experience of people with multiple long-term
conditions with particular reference to the notion of the ‘expert patient’ in the context of self-…

[HTML][HTML] … territory” of goal-setting: Negotiating a novel interactional activity within primary care doctor-patient consultations for patients with multiple chronic conditions

J Murdoch, C Salter, J Ford, E Lenaghan… - Social Science & …, 2020 - Elsevier
… for supporting patients with multiple long-term conditions. It … and patients to work together
to identify patient's priorities, … and treatment, and has to acknowledge the patient's expertise in …

From boundary object to boundary subject; the role of the patient in coordination across complex systems of care during hospital discharge

S Bishop, J Waring - Social science & medicine, 2019 - Elsevier
… , patient involvement is both encouraged and contested by … of past and future long-term
health and social care needs. … they had limited knowledge of the patients being discharged …

Involving relatives in consultations for patients with long-term illnesses: Nurses and physicians' experiences

A Dreyer, A Strom - Nursing ethics, 2019 - journals.sagepub.com
… principles of patient autonomy will likely be challenged due to … how nurses and physicians
experience and deal with relatives … realm of care. In these settings, involving the next of kin in …

[HTML][HTML] The problem with self-management: Problematising self-management and power using a Foucauldian lens in the context of stroke care and rehabilitation

S Fletcher, ST Kulnik, S Demain, F Jones - PloS one, 2019 - journals.plos.org
… and rehabilitation a decade ago, when the United Kingdom (… chronic long-term condition is
the expert in their own condition, … social carepatients and the public’ [10]. Using the term ‘self-…

Research policy for people with multiple long-term conditions and their carers

N Owen, L Dew, S Logan, S Denegri… - … of multimorbidity and …, 2022 - journals.sagepub.com
… only in the United Kingdom but internationally. Health and … the skills and tools needed to
provide the highest quality care. … group of patients, those with multiple long-term conditions (…

Patient and public involvement in healthcare: Potentials and challenges of lay expertise and experiential knowledge

M Jones - 2021 - trepo.tuni.fi
… enable lay experts with lived experience of illness and care to … and legitimacy of lay experts
is highly contested (Brosnan & Kirby … patients with long-term chronic illnesses in particular …

Long-term disabling conditions and disability theory

S Scambler - Routledge handbook of disability studies, 2019 - taylorfrancis.com
… stigma as a concept has been challenged, there exists a … of the subjective experience of
long-term conditions in everyday … of care with high-risk patients receiving professional care, a ‘…

Between knowing and doing person-centredness: A qualitative examination of health professionals' perceptions of roles in self-management support

M Franklin, K Willis, S Lewis, A Rogers, L Smith - Health, 2021 - journals.sagepub.com
… model of chronic condition care that places expectations on, … their professional knowledge
over patient knowledge, … onto patients lacking capital, must be questioned and challenged

[HTML][HTML] The emergence of multimorbidity as a matter of concern: a critical review

E van Blarikom, N Fudge, D Swinglehurst - BioSocieties, 2023 - Springer
realm, given that one in three patientslong-term disease—including the life-long monitoring
and management that it requires—as well as the everyday experience of ‘living with illness’ …