“I know how to advocate”: Parents' experiences in advocating for children and youth diagnosed with autism spectrum disorder
J Smith-Young, R Chafe, R Audas… - Health services …, 2022 - journals.sagepub.com
Health services insights, 2022•journals.sagepub.com
Background: Parental advocacy is a dynamic process that changes depending on the
circumstances and needs of the child and parent. Communication deficits related to an
Autism Spectrum Disorder (ASD) diagnosis often necessitate parental advocacy. This study
describes how parents and caregivers of children and youth diagnosed with ASD engage in
parental advocacy, the challenges they encounter and the advocacy skills they develop.
Method: We used descriptive exploratory methodology informed by reflexive thematic …
circumstances and needs of the child and parent. Communication deficits related to an
Autism Spectrum Disorder (ASD) diagnosis often necessitate parental advocacy. This study
describes how parents and caregivers of children and youth diagnosed with ASD engage in
parental advocacy, the challenges they encounter and the advocacy skills they develop.
Method: We used descriptive exploratory methodology informed by reflexive thematic …
Background
Parental advocacy is a dynamic process that changes depending on the circumstances and needs of the child and parent. Communication deficits related to an Autism Spectrum Disorder (ASD) diagnosis often necessitate parental advocacy. This study describes how parents and caregivers of children and youth diagnosed with ASD engage in parental advocacy, the challenges they encounter and the advocacy skills they develop.
Method
We used descriptive exploratory methodology informed by reflexive thematic analysis. The aim of the study was to explore advocacy in parents and caregivers of children and youth diagnosed with ASD.
Results
We conducted in-depth, semi-structured interviews with 15 parents of children and youth with an ASD diagnosis living in 4 provinces of Atlantic Canada. The pathway in parents’ advocacy journey included: (1) Expressing concerns; (2) Seeking help, assessment, and diagnosis; (3) Acquiring services; (4) Removing barriers; and (5) Developing advocacy skills.
Conclusions
Our findings illustrate the process of parental advocacy, skill development, and the barriers parents encounter in advocating for their children with ASD. Future research might explore how health professionals can support parents’ advocacy efforts.
Sage Journals以上显示的是最相近的搜索结果。 查看全部搜索结果