Supporting coping with parkinson's disease through self tracking

SR Mishra, P Klasnja, J MacDuffie Woodburn… - Proceedings of the …, 2019 - dl.acm.org
… identify and solve problems to improve their quality of life, the … with Parkinsons Disease
accept and plan for their condition. … of life in PwP [8] and worse psychological adjustment to the …

Self‐Management Components as Experienced by People with Parkinson's Disease and Their Carers: A Systematic Review and Synthesis of the Qualitative …

R Tuijt, A Tan, M Armstrong, J Pigott, J Read… - Parkinson's …, 2020 - Wiley Online Library
… Some participants described seeking information as a mechanism to support independence
and adapting to life with Parkinsons [19]. It was necessary, however, to combine information …

Self‐Management Education for Persons with Parkinson's Disease and Their Care Partners: A Quasi‐Experimental Case‐Control Study in Clinical Practice

C Hellqvist, C Berterö, N Dizdar… - Parkinson's …, 2020 - Wiley Online Library
life. Persons with Parkinsons disease and their care partners want guidance from healthcare
… in order to develop skills to adjust to life with a long-term condition. The Swedish National …

Social role functioning in Parkinson's disease: a mixed‐methods systematic review

K Perepezko, JT Hinkle, MD Shepard… - … journal of geriatric …, 2019 - Wiley Online Library
life is like with Parkinson's disease?”), some focused on specific social roles (eg, “Can you
describe how the disease … The Social Adjustment Scale focuses on social roles; however, it is …

Predictors of self-perceived stigma in Parkinson's disease

RD Salazar, E Weizenbaum, TD Ellis… - Parkinsonism & related …, 2019 - Elsevier
… as a motor disorder, the disease burden extends far beyond … life transition, and requires
adjusting to its multifaceted demands [1]. The impact of disease-related stigma on quality of life is …

[HTML][HTML] The burden of care and the understanding of disease in Parkinson's disease

GB Lee, H Woo, SY Lee, SM Cheon, JW Kim - PLoS One, 2019 - journals.plos.org
… no adjustment for multiple … disease (unified Parkinsons disease rating scale and/or non-motor
symptom scale) and disability in daily activity (Schwab and England activities of daily living

Tools to assess the quality of life in patients with Parkinson's disease: A systematic review

A Berardi, E Regoli, M Tofani, D Valente… - Expert Review of …, 2021 - Taylor & Francis
… The MeSH terms used were Parkinsons disease, quality of life, and validation; these
terms resulted in the search strategy which was built for MEDLINE and adapted for the other …

[HTML][HTML] Multidimensional factors can explain the clinical worsening in people with Parkinson's disease during the COVID-19 pandemic: a multicenter cross-sectional …

C Silva-Batista, DB Coelho, RCF Júnior… - Frontiers in …, 2021 - frontiersin.org
… by a linguistic professional to adapt the language for people with PD from all socioeconomic
levels. Most of the questions were self-reported daily life experience regarding a previous …

Non-motor symptoms burden, mood, and gait problems are the most significant factors contributing to a poor quality of life in non-demented Parkinson's disease …

…, ABR Pérez, L Vela, Y Macías, S Escalante… - Parkinsonism & Related …, 2019 - Elsevier
… To identify factors related to a poor health-related and global quality of life (QoL) in a
cohort of non-demented Parkinson's disease (PD) patients and compare to a control group. …

[HTML][HTML] Monitoring Parkinson's disease symptoms during daily life: a feasibility study

M Heijmans, JGV Habets, C Herff, J Aarts… - … Parkinson's Disease, 2019 - nature.com
Parkinsons disease monitoring system, which aims to measure Parkinsons disease symptoms
during daily life … Twenty patients with idiopathic Parkinsons disease participated in this …