Family caregiving in serious illness in the United States: Recommendations to support an invisible workforce

JF Bell, RL Whitney, HM Young - Journal of the American …, 2019 - Wiley Online Library
caregivers of older adults in the context of serious illness and to identify opportunities to
better integrate them into the healthcare workforce. We discuss promising approaches such as …

[HTML][HTML] Informal caregiver burnout? Development of a theoretical framework to understand the impact of caregiving

P Gérain, E Zech - Frontiers in psychology, 2019 - frontiersin.org
… The present work first proposes to adapt the concept of burnout to the context of informal
caregiving … The experience of somatic disorders, illness, or chronic pain has been shown to put …

Resilience in caregivers: A systematic review

C Palacio G, A Krikorian… - American Journal of …, 2020 - journals.sagepub.com
… correlated with a high quality of life, good mental health, and increased personal resources
that helped improve the caregiving experience within the chronic illness context and reduced …

Uncertainty in illness in family caregivers of palliative care patients and associated factors

M Arias-Rojas, S Carreño-Moreno… - … latino-americana de …, 2019 - SciELO Brasil
… level of illness uncertainty experienced by the family caregiver is higher in the context of
palliative care. Based on this finding, it can be inferred that this level is higher in the context of …

Family caregiver support of patient self-management during chronic, life-limiting illness: a qualitative metasynthesis

D Schulman-Green, SL Feder… - Journal of family …, 2021 - journals.sagepub.com
… with a chronic, life-limiting illness. Studies that included single or multiple family caregivers
were included. We defined chronic, life-limiting illness as an illness that is advanced and/or …

Research priorities in family caregiving: process and outcomes of a conference on family-centered care across the trajectory of serious illness

TA Harvath, JM Mongoven, JT Bidwell… - The …, 2020 - academic.oup.com
… Moreover, intervention strategies that are already supported by evidence should be applied
and adapted to caregiving contexts where they may be most needed at the implementation …

Understanding informal caregivers' motivation from the perspective of self‐determination theory: An integrative review

H Dombestein, A Norheim… - … journal of caring …, 2020 - Wiley Online Library
… on the application of SDT in a caregiver context. A systematic review of the … caregiver, the
caregiver's approach to caring and his or her coping strategies depend on the type of illness or …

Primary caregivers in a network context

CS Marcum, S Ashida, LM Koehly - The Journals of Gerontology …, 2020 - academic.oup.com
… dataset consisting of 30 caregiving networks. This approach will deepen our understanding
of caregiving social contexts and inform past findings related to PCGs in the extant literature. …

The impact of informal cancer caregiving: a literature review on psychophysiological studies

RJ Teixeira, S Remondes‐Costa… - European journal of …, 2019 - Wiley Online Library
… In the context of terminal illness, caregivers face the dual challenge of providing care and …
research conducted with caregivers outside of the cancer context (Moya-Albiol et al., 2011). …

Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home–study protocol for a web-based …

A Alvariza, L Häger-Tibell, M Holm, G Steineck… - BMC palliative …, 2020 - Springer
… However, there is still a need to examine whether a web-based intervention can be used
in the context of palliative care to promote family caregivers’ preparedness for …