Public Health England has recommended that services be put in place to support people who choose to withdraw from antidepressants because of a current gap. This study aims to explore the views of members of online withdrawal peer-support groups about existing healthcare and what additional support is are needed.

The administrators of 15 online support groups for people taking antidepressants were asked to advertise an online survey to their members. The survey, which was online from May 2021 to April 2022, was completed by 1276 people from 49 countries.

71% of respondents found their doctors' advice unhelpful (57% ‘very unhelpful’) regarding stopping an antidepressant; the main reasons being ‘Recommended a reduction rate that was too quick for me’, ‘Not familiar enough with withdrawal symptoms to advise me’ and ‘Suggested stopping antidepressants would not cause withdrawal symptoms’. One in three did not seek advice from the prescriber when deciding whether to withdraw, with the main reasons being ‘I felt they would not be supportive’ (58%) and ‘I felt that they didn't have the expertise to help me’ (51%). The most common prescriber responses to those who did seek advice was ‘Suggested a quick withdrawal schedule’ (56%) and ‘Not supportive and offered no guidance (27%). The most common discontinuation periods recommended by doctors were one month (23%) and two weeks (19%). A range of potential professional services were rated ‘very useful’, most frequently: ‘Access to smaller doses (e.g. tapering strips, liquid, smaller dose tablets) to ensure gradual reduction’ (88%) and ‘A health professional providing a personalised, flexible reduction plan’ (79%).

‘This was a convenience sample, which may have been biased towards people who took longer to withdraw, and experienced more withdrawal symptoms, than antidepressant users in general.’ Black and ethnic minority people, and people without access to the internet, were underrepresented.

Most participants reported their prescribers were unable to help them safely stop antidepressants, compelling them to turn to online peer-support groups instead. Our findings indicate, in keeping with previous studies, that clinicians require upskilling in safe tapering of antidepressants, and that patients need specialised services to help them stop safely.