[HTML][HTML] Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach
… professional experiences working alongside families, providers, and other stakeholders. Our
goal was to recruit 32 interdisciplinary professionals … and incorporated the perspectives of …
goal was to recruit 32 interdisciplinary professionals … and incorporated the perspectives of …
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents
C Malcolm, K Knighting - Palliative Medicine, 2021 - journals.sagepub.com
… that families wish to remain at home towards the end of their child’s life supported by specialist
palliative care professionals. … to keep the focus of this paper on the family experience. …
palliative care professionals. … to keep the focus of this paper on the family experience. …
… delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and perceptions of healthcare professionals
S Mitchell, AM Slowther, J Coad, S Bertaud… - Archives of Disease in …, 2022 - adc.bmj.com
… to palliative care from the perspective of other professionals. It is … palliative care from the
perspective of children, families, … "--examining the impact of children's palliative care services …
perspective of children, families, … "--examining the impact of children's palliative care services …
[HTML][HTML] What do parents value regarding pediatric palliative and hospice care in the home setting?
… We also explored potential differences in how subgroups of … of medical care, and professional
standards of practice … grateful for parents' willingness to share their perspectives with them. …
standards of practice … grateful for parents' willingness to share their perspectives with them. …
Experiences at the end of life from the perspective of bereaved parents: Results of a qualitative focus group study
LK Sedig, JL Spruit, TK Paul… - … Journal of Hospice …, 2020 - journals.sagepub.com
… Intended for healthcare professionals … to support the experiences of children and their
families throughout the … a clinical psychologist to explore the experiences of bereaved parents of …
families throughout the … a clinical psychologist to explore the experiences of bereaved parents of …
[HTML][HTML] Experiences of family caregivers of children with cancer while receiving home-based pediatric palliative care in Indonesia: a qualitative study
C Effendy, DK Uligraff, SH Sari, F Angraini… - … palliative care, 2022 - Springer
… at exploring the experiences of family caregivers of children … health care professionals to
care for their sick child at home … discussing the various perspectives towards data interpretation. …
care for their sick child at home … discussing the various perspectives towards data interpretation. …
[HTML][HTML] Family experiences with palliative care for children at home: a systematic literature review
…, LG Kvarme, B Løyland, C Kristiansen, S Helseth… - … palliative care, 2020 - Springer
… professionals and the families has a significant impact on the family’s experience when caring
for the child at … the sick children and their siblings’ perspectives on palliative care at home. …
for the child at … the sick children and their siblings’ perspectives on palliative care at home. …
End‐of‐life palliative home care for children with cancer: A qualitative study on parents' experiences
H Hansson, M Björk, SJ Santacroce… - … journal of caring …, 2023 - Wiley Online Library
… palliative care impacted the entire family during their child's … We suggest that healthcare
professionals support family members … Further studies are needed to explore the perspectives of …
professionals support family members … Further studies are needed to explore the perspectives of …
Healthcare professionals' experiences of the barriers and facilitators to pediatric pain management in the community at end-of-life: A qualitative interview study
… interview study exploring healthcare professionals’ perceptions … Children receiving palliative
care often require complex … This study explored HCPs’ views on barriers and facilitators to at…
care often require complex … This study explored HCPs’ views on barriers and facilitators to at…
[HTML][HTML] Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals
LM Verberne, JC Fahner, SFV Sondaal… - European journal of …, 2021 - Springer
… explore how parents and HCPs currently anticipate the future of the child and family in PPC.
… As part of a larger study exploring the lived experience of families receiving PPC and their …
… As part of a larger study exploring the lived experience of families receiving PPC and their …