Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home–study protocol for a web-based …

A Alvariza, L Häger-Tibell, M Holm, G Steineck… - BMC palliative …, 2020 - Springer
… In palliative care, family caregivers also need to prepare for the patient’s death [3]. … from
qualitative data and focuses on the involvement and principal needs of family caregivers in …

Barriers and facilitators to preparedness for death: experiences of family caregivers of elders with dementia

CA Hovland, BJ Kramer - Journal of Social Work in End-of-life & …, 2019 - Taylor & Francis
… for death among family caregivers of persons who die with dementia. The current study
investigated the experiences of family caregivers of … to preparation for the family member’s death. …

Navigating the path to care and death at home—it is not always smooth: a qualitative examination of the experiences of bereaved family caregivers in palliative care

EA Lobb, K Bindley, C Sanderson… - … Oncology Research …, 2019 - journals.lww.com
… This supports earlier findings and highlights that family caregivers need … our study, particularly
the distress in caregivers witnessing the dying process at home suggests that preparation

'It all depends!': A qualitative study of preferences for place of care and place of death in terminally ill patients and their family caregivers

K Gerber, B Hayes, C Bryant - Palliative medicine, 2019 - journals.sagepub.com
family caregivers had to find the balance between not knowing enough and knowing too
much, and this study … For patients, preparation meant discussing their wishes and negotiating …

What does death preparedness mean for family caregivers of persons with dementia?

P Durepos, T Sussman, J Ploeg… - American Journal of …, 2019 - journals.sagepub.com
… a qualitative study to validate study findings and generate items for a death preparedness
questionnaire in dementia. … in order to prepare for the death of a loved one? An ethnographic …

A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer

AS Barlund, B André, K Sand, AT Brenne - BMC palliative care, 2021 - Springer
… professionals and caregivers empowers caregivers to fulfil their … death [13]. This facilitates
a smooth transition of care and allows the families to prepare for end- of- life phase and death […

Ethical challenges in family caregivers of patients with advanced cancer–a qualitative study

A Ullrich, M Theochari, C Bergelt, G Marx, K Woellert… - BMC Palliative Care, 2020 - Springer
… skills of healthcare providers to sufficiently prepare FC for substitute decision-making [15]
and … However, after-death interviews are an important tool to study the situation of FC in the …

The experiences and needs of primary family caregivers of patients with multiple myeloma: A qualitative analysis

C Quiñoa-Salanova, J Porta-Sales… - Palliative …, 2019 - journals.sagepub.com
… ’ competences in this regard may not only have an immediate impact on their wellbeing
but can also help, in the long term, to prepare them for the death of their loved one and the …

Caregiver burden and bereavement among family caregivers who lost terminally ill cancer patients

Y Tang - Palliative & Supportive Care, 2019 - cambridge.org
… in participating in this study. The main qualitative data presented here were collected six …
, experiencing a beautiful death and preparing for death, helped the FCs proceed through …

Preparedness for the death of an elderly family member: A possible protective factor for pre-loss grief in informal caregivers

J Singer, A Papa - Archives of Gerontology and Geriatrics, 2021 - Elsevier
… This qualitative study provided evidence that preparedness … was derived from the Family
Caregiving Inventory, which was … to maintain hope and prepare for the loved one's death. There …