The life experiences among primary family caregivers of home-based palliative care

MP Wu, SJ Huang, LI Tsao - American Journal of Hospice …, 2020 - journals.sagepub.com
… of care, preparing for the death of a family member, arranging … study can serve as a reference
for helping family caregivers develop comprehensive knowledge, skills, and preparations

[HTML][HTML] Caregiver's burden at the end of life of their loved one: insights from a longitudinal qualitative study among working family caregivers

FM Bijnsdorp, BD Onwuteaka-Philipsen, CRL Boot… - BMC Palliative Care, 2022 - Springer
… This study was designed as a longitudinal qualitative study using in-depth interviews with …
Some caregivers reported that they had been able to prepare for the death of their loved one, …

Family caregivers' experiences of caring for advanced cancer patients: A qualitative systematic review and meta-synthesis

Y Zhu, X Pei, X Chen, T Li - Cancer Nursing, 2023 - journals.lww.com
… This review aims to synthesize qualitative research on experiences of FCGs caring for … to
the situation in which caregivers face grim prognoses of death. Death was a constant threat and …

[HTML][HTML] A qualitative study regarding COVID-19 inpatient family caregivers' need for supportive care

A Picardi, M Miniotti, P Leombruni… - Clinical practice and …, 2021 - ncbi.nlm.nih.gov
… and, if necessary, gradually prepare them for the possible death of their loved ones.
Regarding this last point, in cases where the patient is in critical condition with a poor prognosis, …

Family caregivers' anticipatory grief: A conceptual framework for understanding its multiple challenges

A Coelho, M de Brito, P Teixeira… - Qualitative health …, 2020 - journals.sagepub.com
analyzed the data openly and discussed and resolved inconsistencies. Qualitative data
analysis … In other words, the FC is required to address the threat of death and separation while …

[HTML][HTML] “How long can I carry on?” the need for palliative care in Parkinson's disease: A qualitative study from the perspective of bereaved family caregivers

H Lennaerts-Kats, A Ebenau, M Steppe… - Journal of …, 2020 - content.iospress.com
family caregivers also experienced difficulties after the death of … daily routines immediately
following the death of the loved one, … Preparing for the palliative care phase before the person …

Associations of death‐preparedness states with bereavement outcomes for family caregivers of terminally ill cancer patients

FH Wen, WC Chou, MM Hou, PJ Su… - Psycho …, 2022 - Wiley Online Library
death was measured by the 5-item Preparation for End-of-Life subscale of the Quality of Life
at the End of Life (QUAL-E) scale (QUAL-E Preparation … , preferably by qualitative research. …

The concept of a good death from the perspectives of family caregivers of advanced cancer patients

EP Gurdogan, B Aksoy, E Kinici - OMEGA-Journal of Death …, 2022 - journals.sagepub.com
… These components were identified as pain and symptom management, preparation for
death, clear decision making, contributing to others, affirmation of the whole person and …

Quality of bereavement for caregivers of patients who died by medical assistance in dying at home and the factors impacting their experience: a qualitative study

N Hashemi, E Amos, B Lokuge - Journal of palliative medicine, 2021 - liebertpub.com
… are by MAiD, we would like to transfer this knowledge to the other 98% of deaths. To prepare
caregivers for an expected death, we should strive to increase their medical knowledge …

[HTML][HTML] “You begin to give more value in life, in minutes, in seconds”: spiritual and existential experiences of family caregivers of patients with advanced cancer …

AC Benites, G Rodin, ÉA de Oliveira-Cardoso… - Supportive Care in …, 2021 - Springer
… ; (ii) shifting hope: from death as a possibility to preparation for impending death; (iii) reframing
… The consolidated criteria for reporting qualitative research (COREQ) guided this study to …