Regulating the Use of Genetic Testing by Insurers and Employers in the Province of Quebec: Is the Genetic Non-Discrimination Act Really Necessary?

Y Joly, G Marrocco - Genetic testing and the governance of risk in the …, 2020 - Springer
genetic discrimination (GD), including Canada in 2017. Quebec was quick to challenge the
constitutionality of the Genetic Non-Discrimination … 4 on “Genetic Privacy in Employment and …

Is Genetic Discrimination back on the Radar? A commentary on the recent Court of Appeal Reference decision on the Genetic Non-Discrimination Act (GNDA)

Y Joly, G Dalpé, M Pinkesz - Canadian Journal of Bioethics, 2019 - erudit.org
… A complementary component to our proposal is to update Canada’s obsolete information
privacy laws to specifically address and regulate the use of genetic data, especially given the …

[PDF][PDF] Genetic data and the right to privacy: towards a relational theory of privacy?

RÁ Costello - Human Rights Law Review, 2022 - academic.oup.com
… Section four then turns to examine how genetic privacy is regulated in law, examining the …
III (which covers various forms of equality and non-discrimination rights) of the Charter while …

Justice for Our Genes: The Case for Genetic Non-discrimination Regulations in the New Zealand Life Insurance Industry.

EB Boyle - Journal of Law & Medicine, 2022 - search.ebscohost.com
genetic test results from applicants, driving up the cost to obtain life insurance for those with
known susceptibilities to genetic … concluding that genetic non-discrimination regulations …

Identifying the Key Features of an Effective Non-Discrimination Policy: A Delphi Study

D Uberoi, D Gratien, K Cheung, E Kondrup, N Palmour… - papers.ssrn.com
… 61.9%, n = 26/42) believed that genetic privacy laws were one of the most suitable approaches
to … that privacy law is not suitable, as it would reinforce the idea that genetic information is …

Reference Re Genetic Non-Discrimination Act: How to Make Space for Some Certainty

HL Kong - The Supreme Court Law Review …, 2022 - digitalcommons.osgoode.yorku.ca
… She concluded that parliamentarians aimed at a specific mischief: “the ‘gap’ in the laws,
which left individuals vulnerable to genetic discrimination and grounded the fear of genetic

Striking the Right Balance: Does The Genetic Non-Discrimination Act Promote Access To Insurance?

E Adjin-Tettey - McGill JL & Health, 2020 - HeinOnline
Genetic testing also raises privacy concerns when entities such as insurers have access
to individuals' test results.Health care professionals have described the lack of legislation …

[HTML][HTML] The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage

A Lenartz, AM Scherer, WR Uhlmann, SM Suter… - Genetics in …, 2021 - Elsevier
… the privacy of their genetic information than the privacy of … genetic privacy than other forms
of privacy, when asked how important they thought it was to have a law that prevented genetic

[PDF][PDF] Genetic data are not always personal—disaggregating the identifiability and sensitivity of genetic data

J Rahnasto - Journal of Law and the Biosciences, 2023 - academic.oup.com
… 25 A great number of states have enacted legislation addressing genetic privacy, either
as part of general consumer data protection laws or in more narrow and targeted regulations. …

To Gene or Not to Gene: Genetic Privacy Implications in the Age of Big Data

G Prabhakar - Pub. Int. LJNZ, 2021 - HeinOnline
… the necessity of genetic privacy protections. This article argues that privacy is not a trade-off
between the minority and the majority. Instead, with the correct conception of privacy, all …