Responsibility in dealing with genetic risk information

S Wöhlke, J Perry - Social Theory & Health, 2021 - Springer
… the duty to know. Laypeople share both the right to autonomous decisions for predictive genetic
testing … Besides, it is difficult to account for how individual personality traits may influence …

Prenatal genetic screening, epistemic justice, and reproductive autonomy

A Knight, J Miller - Hypatia, 2021 - cambridge.org
… past forty years has refined liberal accounts of patient autonomy. The debt to liberalism is …
: we argue that the federal government has an obligation to affirmatively allocate the funds to …

Diagnostic uncertainties, ethical tensions, and accounts of role responsibilities in genetic counseling communication

G Thomassen Hammerstad, S Sarangi… - … of genetic counseling, 2020 - Wiley Online Library
… can be trusted to make autonomous decisions within a … genetic risk could be construed as
implicit blame. This works to frame CF as the kind of person who wants to take responsibility

[HTML][HTML] Genetic testing and family entanglements

R Dimond, S Doheny, L Ballard, A Clarke - Social science & medicine, 2022 - Elsevier
obligation an individual can feel towards another becomes the site of care. In this account,
going for the test … obviously the bigger picture of erm the guilt with my sister, seeing my sister …

Challenges to effective and autonomous genetic testing and counseling for ethno-cultural minorities: a qualitative study

N Cohen-Kfir, ME Bentwich, A Kent, N Dickman… - BMC Medical …, 2020 - Springer
… to communicate complex genetic information while operating under an obligation for patient
… Yet previous studies have already indicated that the Arab minority ethnic group, accounting

How uncertainty influences lay people's attitudes and risk perceptions concerning predictive genetic testing and risk communication

S Wöhlke, M Schaper, S Schicktanz - Frontiers in Genetics, 2019 - frontiersin.org
autonomy of an individual concerning his or her own genetic … against genetic information
lies in potential feelings of guilt of … genetic counseling should account for the fact that predictive …

Prevention in the age of personal responsibility: epigenetic risk-predictive screening for female cancers as a case study

I Bolt, EM Bunnik, K Tromp, N Pashayan… - Journal of medical …, 2021 - jme.bmj.com
… A different, prospective account of responsibility meets part … she has an obligation to be
healthy, supplemented by blame and/… an autonomous decision not to participate in screening and …

[HTML][HTML] Genetic duties

JL Roberts, AL Foulkes - William and Mary law review, 2020 - ncbi.nlm.nih.gov
… that legal liability could have on genetic testing and clinical care… by the ethical principles of
autonomy, beneficence, and … as a cleaner alternative to the fault-based tort system. Instead of …

Breast Cancer Genetic Screening and Critical Bioethics' Gaze 1

LS Parker - Women, Medicine, Ethics and the Law, 2020 - taylorfrancis.com
… Cultural critics seeking an account of the social practice of mediн … for breast cancer, we may
witness a similar eventual blaming of … : the need to balance autonomous patient choice and …

From a right to a preference: rethinking the right to genomic ignorance

L Dive - The Journal of Medicine and Philosophy: A Forum for …, 2021 - academic.oup.com
… our own autonomy, as well as out of obligation toward other … by a genetic test has the capacity
to enhance a patient’s … as aspirations, then no one is at fault if they are not met. Effectively, …