[HTML][HTML] Data management in health-related research involving indigenous communities in the United States and Canada: A scoping review

RB Woodbury, JA Beans, VY Hiratsuka… - Frontiers in …, 2019 - frontiersin.org
research with a commentary or literature review. Twenty-five articles discussed data management
in … to generalize findings to other Indigenous communities or health research studies. …

[HTML][HTML] Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes

SR Carroll, I Garba, R Plevel, D Small-Rodriguez… - Frontiers in …, 2022 - frontiersin.org
… history of exploitative research with tribal communities, the ability of tribes to … Indigenous
Data Governance as high-level guidance for enhancing IDSov in research and data governance

[HTML][HTML] Indigenous data governance: strategies from United States native nations

SR Carroll, D Rodriguez-Lonebear… - Data Science …, 2019 - ncbi.nlm.nih.gov
… provide case studies of Indigenous data governance occurring at tribal and non-tribal entities.
… They do so by controlling access to research about tribal peoples, resources, and cultures, …

Tribal Data Governance and informational privacy: constructing indigenous data sovereignty

R Tsosie - Mont. L. Rev., 2019 - HeinOnline
… For example, a health study of diabetes among tribal members … to biomedical researchers
seeking to work in tribal communities. In … and Alaska Native tribes should include specific …

The CARE principles for indigenous data governance

S Carroll, I Garba, O Figueroa-Rodríguez… - Data science …, 2020 - research.ed.ac.uk
… Given that most Indigenous data are held by non-Indigenous governments, … Indigenous
Peoples’ participation in data governance activities is central to realizing Indigenous Data

What we see, what we don't see: data governance, archaeological spatial databases and the rights of indigenous peoples in an age of big data

N Gupta, S Blair, R Nicholas - Journal of Field Archaeology, 2020 - Taylor & Francis
research and in the management of archaeological cultural heritage. In this paper, we
consider data governance … the perspective of the rights of Indigenous peoples. We examine the …

A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States

R Taitingfong, CS Bloss, C Triplett… - … American Medical …, 2020 - academic.oup.com
… Services (IHS), 6 and 12 tribal communities participate in health research … a systematic
review of the literature on AI/AN and NHPI perspectives on privacy as it relates to health research. …

Indigenous data sovereignty: University institutional review board policies and guidelines and research with American Indian and Alaska Native communities

TL Marley - American Behavioral Scientist, 2019 - journals.sagepub.com
Indian Tribe for improper use of blood samples taken from … the 1995 Navajo Nation Health
Research Code, which was … in a tribal community, keep in mind that tribal communities are …

[HTML][HTML] Access and management: Indigenous perspectives on genomic data sharing

G Nanibaa'A, KS Barton, KM Porter, T Mai… - Ethnicity & …, 2019 - ncbi.nlm.nih.gov
… extends to research endeavors and data governance. … genetics and genomics research in
tribal communities have taken … were health researchers, professors, clinicians, tribal research

[HTML][HTML] What does it mean to conduct participatory research with Indigenous peoples? A lexical review

A Dadich, L Moore, V Eapen - BMC Public Health, 2019 - Springer
… improved health outcomes within Indigenous communities. Similarly, in their systematic review
on … Organization [1], ‘Health research involving Indigenous Peoples… [is] to be organized, …