[HTML][HTML] Data management in health-related research involving indigenous communities in the United States and Canada: A scoping review
RB Woodbury, JA Beans, VY Hiratsuka… - Frontiers in …, 2019 - frontiersin.org
… research with a commentary or literature review. Twenty-five articles discussed data management
in … to generalize findings to other Indigenous communities or health research studies. …
in … to generalize findings to other Indigenous communities or health research studies. …
[HTML][HTML] Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes
… history of exploitative research with tribal communities, the ability of tribes to … Indigenous
Data Governance as high-level guidance for enhancing IDSov in research and data governance…
Data Governance as high-level guidance for enhancing IDSov in research and data governance…
[HTML][HTML] Indigenous data governance: strategies from United States native nations
SR Carroll, D Rodriguez-Lonebear… - Data Science …, 2019 - ncbi.nlm.nih.gov
… provide case studies of Indigenous data governance occurring at tribal and non-tribal entities.
… They do so by controlling access to research about tribal peoples, resources, and cultures, …
… They do so by controlling access to research about tribal peoples, resources, and cultures, …
Tribal Data Governance and informational privacy: constructing indigenous data sovereignty
R Tsosie - Mont. L. Rev., 2019 - HeinOnline
… For example, a health study of diabetes among tribal members … to biomedical researchers
seeking to work in tribal communities. In … and Alaska Native tribes should include specific …
seeking to work in tribal communities. In … and Alaska Native tribes should include specific …
The CARE principles for indigenous data governance
… Given that most Indigenous data are held by non-Indigenous governments, … Indigenous
Peoples’ participation in data governance activities is central to realizing Indigenous Data …
Peoples’ participation in data governance activities is central to realizing Indigenous Data …
What we see, what we don't see: data governance, archaeological spatial databases and the rights of indigenous peoples in an age of big data
N Gupta, S Blair, R Nicholas - Journal of Field Archaeology, 2020 - Taylor & Francis
… research and in the management of archaeological cultural heritage. In this paper, we
consider data governance … the perspective of the rights of Indigenous peoples. We examine the …
consider data governance … the perspective of the rights of Indigenous peoples. We examine the …
A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States
R Taitingfong, CS Bloss, C Triplett… - … American Medical …, 2020 - academic.oup.com
… Services (IHS), 6 and 12 tribal communities participate in health research … a systematic
review of the literature on AI/AN and NHPI perspectives on privacy as it relates to health research. …
review of the literature on AI/AN and NHPI perspectives on privacy as it relates to health research. …
Indigenous data sovereignty: University institutional review board policies and guidelines and research with American Indian and Alaska Native communities
TL Marley - American Behavioral Scientist, 2019 - journals.sagepub.com
… Indian Tribe for improper use of blood samples taken from … the 1995 Navajo Nation Health
Research Code, which was … in a tribal community, keep in mind that tribal communities are …
Research Code, which was … in a tribal community, keep in mind that tribal communities are …
[HTML][HTML] Access and management: Indigenous perspectives on genomic data sharing
G Nanibaa'A, KS Barton, KM Porter, T Mai… - Ethnicity & …, 2019 - ncbi.nlm.nih.gov
… extends to research endeavors and data governance. … genetics and genomics research in
tribal communities have taken … were health researchers, professors, clinicians, tribal research …
tribal communities have taken … were health researchers, professors, clinicians, tribal research …
[HTML][HTML] What does it mean to conduct participatory research with Indigenous peoples? A lexical review
… improved health outcomes within Indigenous communities. Similarly, in their systematic review
on … Organization [1], ‘Health research involving Indigenous Peoples… [is] to be organized, …
on … Organization [1], ‘Health research involving Indigenous Peoples… [is] to be organized, …