[HTML][HTML] Access and management: Indigenous perspectives on genomic data sharing
G Nanibaa'A, KS Barton, KM Porter, T Mai… - Ethnicity & …, 2019 - ncbi.nlm.nih.gov
… extends to research endeavors and data governance. … genetics and genomics research in
tribal communities have taken … were health researchers, professors, clinicians, tribal research …
tribal communities have taken … were health researchers, professors, clinicians, tribal research …
Data sovereignty in community-based environmental monitoring: toward equitable environmental data governance
V Reyes-García, A Tofighi-Niaki, BJ Austin… - …, 2022 - academic.oup.com
… the embeddedness of published data in Indigenous worldviews and contexts to be recognized.
Although data governance rules vary substantially across Indigenous groups and most …
Although data governance rules vary substantially across Indigenous groups and most …
What does it mean to conduct participatory research with Indigenous peoples? A lexical review
… improved health outcomes within Indigenous communities. Similarly, in their systematic review
on … Organization [1], ‘Health research involving Indigenous Peoples… [is] to be organized, …
on … Organization [1], ‘Health research involving Indigenous Peoples… [is] to be organized, …
An integrative review of the barriers to indigenous peoples participation in biobanking and genomic research
J Aramoana, J Koea… - JCO global oncology, 2020 - ascopubs.org
… literature review was conducted to identify studies reporting on the experience of Indigenous
peoples … part in advanced medical research as a means of improving their own health and …
peoples … part in advanced medical research as a means of improving their own health and …
Consolidated criteria for strengthening reporting of health research involving indigenous peoples: the CONSIDER statement
… research to address the causes, there is an extended legacy of health research exploiting
Indigenous Peoples… If a systematic analysis is not available, the researchers should report any …
Indigenous Peoples… If a systematic analysis is not available, the researchers should report any …
Elevating the uses of storytelling approaches within Indigenous health research: a critical and participatory scoping review protocol involving Indigenous people and …
… incorporating storytelling as a method in Indigenous health research grows, a critical review
… this decolonizing research method is imperative. Our liaison librarian for Indigenous health (…
… this decolonizing research method is imperative. Our liaison librarian for Indigenous health (…
Implementation effectiveness of health interventions for indigenous communities: a systematic review
T Harding, J Oetzel - Implementation Science, 2019 - Springer
… to transition innovative health research into health policy and practice and ultimately achieve
health equity for Indigenous populations [3, 7]. Indigenous populations around the globe …
health equity for Indigenous populations [3, 7]. Indigenous populations around the globe …
Indigenous data, indigenous methodologies and indigenous data sovereignty
M Walter, M Suina - Educational Research Practice in Southern …, 2023 - taylorfrancis.com
… on Indigenous Data Sovereignty directly to tribes and tribal leaders as well as to non-Indigenous
audiences that produce data about the tribes … in the global Indigenous Data Sovereignty …
audiences that produce data about the tribes … in the global Indigenous Data Sovereignty …
Genomic research through an indigenous lens: understanding the expectations
NA Garrison, M Hudson, LL Ballantyne… - Annual review of …, 2019 - annualreviews.org
… tribal communities make decisions about genetic research (… Health Research in its guidelines
for health research involving … of First Nations data governance and the role of genomics in …
for health research involving … of First Nations data governance and the role of genomics in …
[PDF][PDF] Indigenous data sovereignty
… results in Indigenous control of Indigenous data through both internal Indigenous community
data governance policies and practices and external stewardship of Indigenous data via …
data governance policies and practices and external stewardship of Indigenous data via …