Palliative care to support the needs of adults with neurological disease

BM Kluger, P Hudson, LC Hanson, R Bužgovà… - … Lancet Neurology, 2023 - thelancet.com
… Although early models of palliative care focused on end-of-life care in people … Review
provides a framework for adult neuropalliative care. We don’t cover paediatric neuropalliative care, …

Effects of palliative care for progressive neurologic diseases: a systematic review and meta-analysis

LML Chan, OY Yan, JJJ Lee, WWT Lam, CC Lin… - Journal of the American …, 2023 - Elsevier
… Hence, this study aimed to perform a systematic review with … of palliative interventions for
progressive neurologic diseases on … palliative care model in progressive neurologic disease

Advance care planning in neurodegenerative disorders: a scoping review

A Giordano, L De Panfilis, M Perin, L Servidio… - International Journal of …, 2022 - mdpi.com
… , decision-making models, and attitudes toward EOL care. All … on palliative care in chronic
and progressive neurological … the European Association of Palliative Care recently appointed a …

Neuropalliative care: An integrative review of the nursing literature

M Sofronas, DK Wright - International Journal of Nursing Studies, 2021 - Elsevier
… records identified, included and excluded in this literature review. … Palliative care models
originating in oncology were … needs of patients with progressive neurological disease in …

Triggers for referral to specialized palliative care in advanced neurologic and neurosurgical conditions: a systematic review

K McConvey, K Kazazian… - Neurology: Clinical …, 2022 - AAN Enterprises
… Statistical modeling showed that older age at onset of neuromuscular … study to evaluate
the effects of neuropalliative care on patients with progressive neurologic disorders and their …

Models of outpatient neuropalliative care for patients with amyotrophic lateral sclerosis

JN Phillips, J Besbris, LA Foster, NM Kramer, S Maiser… - Neurology, 2020 - AAN Enterprises
… , treatment is focused on patients with chronic conditions related to progressive disease or
sequelae from acute neurologic … The literature provides limited descriptions of the type and …

The effect of neuropalliative care on quality of life and satisfaction with quality of care in patients with progressive neurological disease and their family caregivers: an …

R Bužgová, R Kozáková, M Bar - BMC Palliative Care, 2020 - Springer
… In the dynamic model, specialized palliative care services are provided … The aim of palliative
care in all stages of disease should be to … Based on a systematic review and meta-analysis, …

The palliative care information needs of patients with amyotrophic lateral sclerosis and their informal caregivers: a scoping review

J Gillespie, A Przybylak-Brouillard, CL Watt - Journal of Pain and Symptom …, 2021 - Elsevier
… Amyotrophic Lateral Sclerosis (ALS) is a fatal, progressive, neurodegenerative disease, …
.1, 2, 3 The primary feature of ALS is progressive muscle weakness of limb, bulbar, thoracic and …

Palliative care in movement disorders: an evolving field

ZA Macchi, CG Tarolli, BM Kluger - … Neurology and Neuroscience Reports, 2021 - Springer
… Most degenerative and inherited movement disorders are associated with progressive disability
… While we refer to this model as primary palliative care, other terms used in the literature

… of short-term integrated palliative care on patient-reported outcomes among patients severely affected with long-term neurological conditions: a randomized clinical …

W Gao, R Wilson, N Hepgul, D Yi, C Evans… - JAMA Network …, 2020 - jamanetwork.com
… of neurological disorders during 1990-2015: a systematic … of progressive neurodegenerative
and other neurological … may help to support wider implementation of this new care model in …