Specialist paediatric palliative care for children and young people with cancer: a mixed-methods systematic review

J Taylor, A Booth, B Beresford, B Phillips… - Palliative …, 2020 - journals.sagepub.com
… (eg oncologists, paediatricians, nurses) with paediatric palliative care training, or services
who … satisfaction with SPPC and review of children’s medical records to determine end-of-life

[HTML][HTML] Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needs

S Amarri, A Ottaviani, A Campagna… - … Journal of Pediatrics, 2021 - Springer
… (Cohen et al., Pediatrics 127: 529–538, … study investigated the prevalence of children with
medical complexities eligible for a local palliative care network, including a paediatric hospice. …

Comparing health care provider-perceived barriers to pediatric palliative care fifteen years ago and today

JF Bogetz, MC Root, L Purser… - … of palliative medicine, 2019 - liebertpub.com
study used self-report electronic surveys to explore nursing perspectives about barriers to
pediatric palliative and end-of-life care … include physicians in this iteration of the study as other …

[HTML][HTML] … and priorities for pediatric palliative care research in the US and similar practice settings: report from a pediatric palliative care research network workshop

C Feudtner, AR Rosenberg, RD Boss, L Wiener… - Journal of Pain and …, 2019 - Elsevier
… being active pediatric palliative and hospice care investigators… were pediatricians board
certified in hospice and palliative … (in areas such as study design, measurement of patient …

Instruments to measure outcomes in pediatric palliative care: a systematic review

M Friedel, I Aujoulat, AC Dubois, JM Degryse - Pediatrics, 2019 - publications.aap.org
… Broadly, pediatric respite involves individuals other than family members caring for a child
with a medical condition for a short period of time. It is generally accepted that caregivers are …

[HTML][HTML] Defining the boundaries of palliative care in pediatric oncology

A Cuviello, JC Raisanen, PK Donohue, L Wiener… - Journal of pain and …, 2020 - Elsevier
… We designed this multicenter study to 1) assess pediatric oncology practitioners' … The
oncology groups' child life specialists who participated in this study requested inclusion. In total, 77 …

[HTML][HTML] Pediatric palliative care in oncology

J Snaman, S McCarthy, L Wiener… - Journal of clinical …, 2020 - ncbi.nlm.nih.gov
… In this review, we focus on advancements in the specific domains within … of these aspects
into their care, few pediatricians routinely address these topics. Physicians who identified as …

Barriers to palliative care in pediatric oncology in Switzerland: a focus group study

M Rost, E De Clercq, M Rakic… - Journal of pediatric …, 2020 - journals.sagepub.com
… small fraction of children receive pediatric palliative care and only a … of pediatric palliative
care in Swiss pediatric oncology. … physician argued that collaborating outpatient pediatricians “…

The benefits and burdens of pediatric palliative care and end-of-life research: a systematic review

MS Weaver, K Mooney-Doyle, KP Kelly… - … of palliative medicine, 2019 - liebertpub.com
… An implementable tool to quantify and qualify stakeholder benefit/burden could translate
into a triaged care intervention as best practice in pediatric palliative care and …

Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: a qualitative study

K Hein, K Knochel, V Zaimovic, D Reimann… - Palliative …, 2020 - journals.sagepub.com
… In total, 14 healthcare providers and stakeholders participated in each workshop: 4
paediatricians, 1 emergency physician, 1 psychologist, 1 chaplain, 3 nurses (intensive …