… in views toward and participation in genetic studies and precision medicine research in the United States: a systematic review of qualitative and quantitative studies

ER Fisher, R Pratt, R Esch, M Kocher… - Molecular genetics & …, 2020 - Wiley Online Library
… design and recruitment strategies that will assist in inclusion … of minority perspectives toward
genetic-based research, identify … issues in genetics, including federal spending on genetic

Justice, diversity, and research ethics review

DH Strauss, SA White, BE Bierer - Science, 2021 - science.org
value of institutional review boards (IRBs) and research … of a racial, ethnic, or other minority,
the IRB might reasonably ask … faces particular challenges in the recruitment and retention of …

International society of psychiatric genetics ethics committee: issues facing us

…, LK Davis, ISPG Ethics Committee - … of Medical Genetics …, 2019 - Wiley Online Library
… of minority populations in genomic research may be due to … the recruitment of diverse
samples for genetics research. … may reopen this question (eg, with increasing predictive value of …

Considerations for cardiovascular genetic and genomic research with marginalized racial and ethnic groups and indigenous peoples: a scientific statement from the …

G Mudd-Martin, AL Cirino, V Barcelona… - Circulation: Genomic …, 2021 - Am Heart Assoc
genetic and genomic studies, it is critical to consider issues of … At a minimum, protocols for
recruitment, data collection, and data … among African Americans in the Jackson Heart Study.…

[HTML][HTML] A framework for promoting diversity, equity, and inclusion in genetics and genomics research

TR Rebbeck, JFP Bridges, JW Mack, SW Gray… - JAMA Health …, 2022 - jamanetwork.com
… technical advances and complex ethical, legal, social, and … Historically, it has been difficult
to obtain the funding required … before the first participant is recruited. Continued dialogue with …

Exploring racial and ethnic minority individuals' journey to becoming genetic counselors: Mapping paths to diversifying the genetic counseling profession

TE Alvarado‐Wing, J Marshall, A Best… - Journal of Genetic …, 2021 - Wiley Online Library
… necessary to recruit and support racial/ethnic minority … this study suggest ongoing barriers
and challenges faced by … this practice could introduce ethical challenges with regard to …

Learning from Black/African American participants: applying the integrated behavioral model to assess recruitment strategies for a glaucoma genetic study

A Kikut, M Sanyal, M Vaughn… - Health …, 2022 - Taylor & Francis
… desire to participate in ethical research focused on mitigating … Recruitment of AAs for medical
studies has proven difficult in … of research and genetic research among African Americans

Enhancing inclusion of diverse populations in genomics: A competence framework

SM Sharif, M Blyth, M Ahmed… - Journal of genetic …, 2020 - Wiley Online Library
… engagement of ethnic minority populations in genomics, for … of research projects from
design and set up to recruitment and … These ethical issues should also be detailed in patient …

[HTML][HTML] Addressing underrepresentation in genomics research through community engagement

AA Lemke, ED Esplin, AJ Goldenberg… - … of Human Genetics, 2022 - cell.com
… who contribute to research recruitment, and research institutions might also … The representation
problem … Underrepresentation is problematic from both a scientific and an ethical point …

[HTML][HTML] Polygenic risk scores in the clinic: new perspectives needed on familiar ethical issues

ACF Lewis, RC Green - Genome Medicine, 2021 - Springer
… monogenic setting and genomics scholarship, to ask whether such issues continue to be …
aims to recruit more than 45% of its one million participants from racial and ethnic minorities [80]…