Community protections in American Indian and Alaska Native participatory research—A scoping review

JA Beans, B Saunkeah, RB Woodbury, TS Ketchum… - Social Sciences, 2019 - mdpi.com
Experiences with unethical research practices have caused some American Indian and
Alaska Native (AIAN) individuals, organizations, and tribes to mistrust health research. To …

Research ethics and indigenous communities

A Kelley, A Belcourt-Dittloff… - American journal of …, 2013 - ajph.aphapublications.org
Institutional review boards (IRBs) function to regulate research for the protection of human
participants. We share lessons learned from the development of an intertribal IRB in the …

A culturally tailored research ethics training curriculum for American Indian and Alaska Native communities: A randomized comparison trial

CR Pearson, M Parker, C Zhou, C Donald… - Critical Public …, 2019 - Taylor & Francis
The primary aim of this study was to develop an American Indian and Alaska Native (AIAN)
tailored research with human subjects curriculum that would increase the participation of …

Building research capacity with members of underserved American Indian/Alaskan Native communities: Training in research ethics and the protection of human …

KM Jetter, M Yarborough… - Health Promotion …, 2015 - journals.sagepub.com
Objective. To develop a research ethics training course for American Indian/Alaskan Native
health clinic staff and community researchers who would be conducting human subjects …

Moving forward: breaking the cycle of mistrust between American Indians and researchers

CM Pacheco, SM Daley, T Brown… - … journal of public …, 2013 - ajph.aphapublications.org
American Indians (AIs) have some of the poorest documented health outcomes of any
racial/ethnic group. Research plays a vital role in addressing these health disparities …

Self-determination in health research: An Alaska Native example of tribal ownership and research regulation

VY Hiratsuka, JA Beans, RF Robinson… - International journal of …, 2017 - mdpi.com
Alaska Native (AN) and American Indian (AI) people are underrepresented in health
research, yet many decline to participate in studies due to past researcher misconduct …

Responsible research with urban American Indians and Alaska natives

RD James, KM West, KG Claw… - … Journal of Public …, 2018 - ajph.aphapublications.org
American Indian and Alaska Native (AI/AN) communities harbor understandable mistrust of
research. Outside researchers have historically controlled processes, promulgating …

Protecting the Navajo people through tribal regulation of research

D Brugge, M Missaghian - Science and Engineering Ethics, 2006 - Springer
This essay explores the process and issues related to community collaborative research that
involves Native Americans generally, and specifically examines the Navajo Nation's efforts …

Conducting research with tribal communities: Sovereignty, ethics, and data-sharing issues

A Harding, B Harper, D Stone, C O'Neill… - Environmental …, 2012 - ehp.niehs.nih.gov
Background: When conducting research with American Indian tribes, informed consent
beyond conventional institutional review board (IRB) review is needed because of the …

CIRTification: Training in human research protections for community-engaged research partners

EE Anderson - … Health Partnerships: Research, Education, and Action, 2015 - muse.jhu.edu
Background: Human research ethics training should provide relevant, meaningful
information and build skills. Compliance should not be the only goal; training should also …