Parent perspectives of receiving early information about palliative and end-of-life care options from their child's pediatric providers
VL Hendricks-Ferguson, JE Haase - Cancer nursing, 2019 - journals.lww.com
Background Parents of children diagnosed with cancer may experience decision regret
about cancer treatment decisions and dissatisfaction with the perceived clarity in information …
about cancer treatment decisions and dissatisfaction with the perceived clarity in information …
Pilot evaluation of a palliative and end-of-life communication intervention for parents of children with a brain tumor
VL Hendricks-Ferguson, K Pradhan… - Journal of Pediatric …, 2017 - journals.sagepub.com
Providing timely palliative and end-of-life care (PC/EOL) information to parents of children
with a serious illness is a national health care priority. The goals of this study were to …
with a serious illness is a national health care priority. The goals of this study were to …
Parent-clinician communication intervention during end-of-life decision making for children with incurable cancer
PS Hinds, LL Oakes, J Hicks, B Powell… - Journal of palliative …, 2012 - liebertpub.com
Background: In this single-site study, we evaluated the feasibility of a parent-clinician
communication intervention designed to: identify parents' rationale for the phase I, do-not …
communication intervention designed to: identify parents' rationale for the phase I, do-not …
Parental perspectives of communication at the end of life at a pediatric oncology institution
Background: The interaction of health care providers and hospital staff with patients and
families at the end of life affects the parental grief experience. Both verbal and nonverbal …
families at the end of life affects the parental grief experience. Both verbal and nonverbal …
Parental decision making in pediatric cancer end-of-life care: using focus group methodology as a prephase to seek participant design input
D Tomlinson, M Capra, J Gammon, J Volpe… - European Journal of …, 2006 - Elsevier
The ultimate aim of our research program is to provide strategies that facilitate parental
decision-making for parents of children with cancer receiving end-of-life care. As a first step …
decision-making for parents of children with cancer receiving end-of-life care. As a first step …
End of life communication among caregivers of children with cancer: A qualitative approach to understanding support desired by families
AE Kenney, SZ Bedoya, CA Gerhardt… - … & supportive care, 2021 - cambridge.org
ObjectivesClinicians and parents are encouraged to have open and honest communication
about end of life with children with cancer, yet there remains limited research in this area …
about end of life with children with cancer, yet there remains limited research in this area …
Parental decision making for children with cancer at the end of life: a meta-ethnography
KE Heinze, MT Nolan - Journal of pediatric oncology …, 2012 - journals.sagepub.com
Parents of pediatric oncology patients are faced with difficult decisions when their child
reaches the end of life. For health care providers to provide optimal care, they must …
reaches the end of life. For health care providers to provide optimal care, they must …
End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines
PS Hinds, L Oakes, W Furman, A Quargnenti… - Cancer …, 2001 - journals.lww.com
Participating in end-of-life decisions is life altering for adolescents with incurable cancer,
their families, and their healthcare providers. However, no empirically developed and …
their families, and their healthcare providers. However, no empirically developed and …
[HTML][HTML] Bereaved parent perspectives on end-of-life conversations in pediatric oncology
R Robert, S Razvi, LL Triche, E Bruera, KM Moody - Children, 2022 - mdpi.com
Background: Professional education pertaining to end-of-life care with pediatric oncology
patients is limited. Pediatric trainees learn about end-of-life conversations largely from the …
patients is limited. Pediatric trainees learn about end-of-life conversations largely from the …
Physicians working in oncology identified challenges and factors that facilitated communication with families when children could not be cured
C Udo, U Kreicbergs, B Axelsson, O Björk… - Acta …, 2019 - Wiley Online Library
Aim We explored physicians' experiences of communicating with families when their child
had cancer and a cure was no longer an option, by focusing on barriers and facilitating …
had cancer and a cure was no longer an option, by focusing on barriers and facilitating …