Hereditary hemorrhagic telangiectasia and health-related quality of life: a qualitative investigation
G Martinent, M Carrot, A Chirac, S Dupuis-Girod… - Quality of Life …, 2020 - Springer
Objective The purpose of the study was to arrive at an accurate description of health-related
quality of life of hereditary hemorrhagic telangiectasia patients. Methods Thirteen semi …
quality of life of hereditary hemorrhagic telangiectasia patients. Methods Thirteen semi …
Development and validation of a quality of life measurement scale specific to hereditary hemorrhagic telangiectasia: the QoL-HHT
TTT Le, G Martinent, S Dupuis-Girod, A Parrot… - Orphanet Journal of …, 2022 - Springer
Background Hereditary hemorrhagic telangiectasia (HHT) disease is a rare genetic disorder
with symptoms and complications that can significantly affect patients' daily lives. To date, no …
with symptoms and complications that can significantly affect patients' daily lives. To date, no …
[图书][B] Living with HHT: Understanding and managing your hereditary hemorrhagic telangiectasia
S Palmer - 2017 - books.google.com
Everything you need to know about nosebleeds, arteriovenous malformations, and other
symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder …
symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder …
Health-related quality of life in hereditary hemorrhagic telangiectasia
UW Geisthoff, K Heckmann… - … —Head and Neck …, 2007 - journals.sagepub.com
OBJECTIVE: To assess and differentiate the health-related quality of life (HR-QoL) in
patients with hereditary hemorrhagic telangiectasia (HHT). STUDY DESIGN AND SETTING …
patients with hereditary hemorrhagic telangiectasia (HHT). STUDY DESIGN AND SETTING …
The subjective experience of patients diagnosed with hereditary hemorrhagic telangiectasia: a qualitative study
L Geerts, C Fantini-Hauwel, E Brugallé, O Boute… - Journal of genetic …, 2017 - Springer
The aim of the present study was to understand the context and psychological impact for
patients diagnosed with hereditary hemorrhagic telangiectasia (HHT). Semi-structured …
patients diagnosed with hereditary hemorrhagic telangiectasia (HHT). Semi-structured …
Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument
RS Kasthuri, S Chaturvedi, S Thomas… - Blood …, 2022 - ashpublications.org
Hereditary hemorrhagic telangiectasia (HHT) is characterized by arteriovenous
malformations and telangiectasia, with primary clinical manifestations of epistaxis and …
malformations and telangiectasia, with primary clinical manifestations of epistaxis and …
Living with hereditary haemorrhagic telangiectasia: stigma, coping with unpredictable symptoms, and self-advocacy
A Sexton, B Gargan, J Taylor, M Bogwitz… - Psychology & …, 2019 - Taylor & Francis
Abstract Objective: Hereditary Haemorrhagic Telangiectasia (HHT) is a genetic condition
causing frequent nose bleeds, skin lesions (telangiectasia) and arteriovenous …
causing frequent nose bleeds, skin lesions (telangiectasia) and arteriovenous …
Hereditary Hemorrhagic Telangiectasia Associating Neuropsychiatric Manifestations with a Significant Impact on Disease Management—Case Report and Literature …
(1) Background: Genetic hereditary hemorrhagic telangiectasia (HHT) is clinically
diagnosed. The clinical manifestations and lack of curative therapeutic interventions may …
diagnosed. The clinical manifestations and lack of curative therapeutic interventions may …
Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis
LA Higa, J McDonald, DO Himes, E Rothwell - Journal of community …, 2016 - Springer
Hereditary hemorrhagic telangiectasia (HHT; OMIM 187300) is a disorder that affects 1:
5000–1: 10,000 people worldwide, with an estimated 60,000 affected individuals in the USA …
5000–1: 10,000 people worldwide, with an estimated 60,000 affected individuals in the USA …
Health-related quality of life in a rare disease: Hereditary hemorrhagic telangiectasia (HHT) or Rendu–Osler–Weber Disease
G Pasculli, F Resta, E Guastamacchia… - Quality of Life …, 2004 - Springer
The levels of the health-related quality of life (HR-QoL) were analyzed in hereditary
hemorrhagic telangiectasia (HHT) patients. The Short Form-36 Health Survey (SF-36) was …
hemorrhagic telangiectasia (HHT) patients. The Short Form-36 Health Survey (SF-36) was …