Challenges to improving end of life care of people with advanced dementia in the UK

ICV Thuné-Boyle, EL Sampson, L Jones, M King… - …, 2010 - journals.sagepub.com
The end of life care received by patients with advanced dementia and their carers is of
increasing importance as the incidence of dementia is set to rise in the next 30 years …

A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

K Lamahewa, R Mathew, S Iliffe, J Wilcock… - Health …, 2018 - Wiley Online Library
Background Dementia is a progressive neurodegenerative condition characterized by
declining functional and cognitive abilities. The quality of end of life care for people with …

Advance care planning for people living with dementia

J Brooke, M Kirk - British Journal of Community Nursing, 2014 - magonlinelibrary.com
The prevalence of dementia is increasing, however it is only recently that dementia has
been recognised as a terminal disease where end-of-life care needs to be discussed and …

End-of-life care: a qualitative study comparing the views of people with dementia and family carers

M Poole, C Bamford, E McLellan, RP Lee… - Palliative …, 2018 - journals.sagepub.com
Background: In recent years, UK policy has increasingly recognised the importance of end-
of-life care in dementia. While professional consensus on optimal palliative care in dementia …

End of life care: a scoping review of experiences of advance care planning for people with dementia

K Jones, G Birchley, R Huxtable, L Clare… - …, 2019 - journals.sagepub.com
Despite increasing attention given to dementia by international governments and policy
makers, the focus of end of life care has been on the dying trajectory of malignant disease …

Healthcare decision-making: past present and future, in light of a diagnosis of dementia

KH Dening, M King, L Jones… - International Journal of …, 2017 - magonlinelibrary.com
End-of-life care policy in the UK states that all people should identify their needs, priorities
and preferences for end-of-life care in the form of advance care planning. Advance care …

Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective

N Kupeli, EL Sampson, G Leavey, J Harrington… - BMC Palliative Care, 2019 - Springer
Background Keeping people living with advanced dementia in their usual place of residence
is becoming a key governmental goal but to achieve this, family carers and health care …

What enables good end of life care for people with dementia? A multi-method qualitative study with key stakeholders

C Bamford, R Lee, E McLellan, M Poole… - BMC geriatrics, 2018 - Springer
Background People with advanced dementia often experience suboptimal end of life care
(EoLC) with inadequate pain control, increased hospitalisation, and fewer palliative care …

Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study

KH Dening, W Greenish, L Jones… - BMJ supportive & …, 2012 - spcare.bmj.com
Objectives People with dementia may experience poor quality end-of-life care. The complex
health and social care system may not meet their needs. The authors' objectives were to …

What is important at the end of life for people with dementia? The views of people with dementia and their carers

SR Hill, H Mason, M Poole, L Vale… - … Journal of Geriatric …, 2017 - Wiley Online Library
Background Approaching end of life is often a time of vulnerability; this is particularly so for
people with dementia and their families where loss of capacity and the ability to …