Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine

DM Carroll, C Hernandez, G Braaten, E Meier… - Personalized …, 2021 - Taylor & Francis
Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is
critical to ensuring that personalized medicine discoveries do not widen AI/AN health …

Genetics research in American Indian communities: sociocultural considerations and participatory research

D Warne - Jurimetrics, 2005 - JSTOR
Genetics research has the potential to improve health care. American Indians (AIS) suffer
from significant health disparities, including significantly higher incidence and prevalence of …

[HTML][HTML] Precision medicine research with American Indian and Alaska Native communities: results of a deliberative engagement with tribal leaders

SB Trinidad, E Blacksher, RB Woodbury, SE Hopkins… - Genetics in …, 2022 - Elsevier
Purpose Amid calls for greater diversity in precision medicine research, the perspectives of
Indigenous people have been underexplored. Our goals were to understand tribal leaders' …

[PDF][PDF] Research regulation in American Indian/Alaska Native communities: Policy and practice considerations

PC Sahota - National Congress of American Indians Policy …, 2007 - academia.edu
Finding new ways to regulate research is becoming an increasingly important issue in
Indian Country. American Indian/Alaska Native (AI/AN) tribal governments as well as urban …

Establishing a national engagement strategy for recruiting Asian Americans and other minorities into biomedical research

FT Randal, S Qi, P Lozano, Y Mo, J Oh… - … in Community Health …, 2022 - muse.jhu.edu
Background: The All of Us Research Program seeks to advance precision medicine and
reduce health disparities by recruiting people in demographic categories that are …

[HTML][HTML] Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

VY Hiratsuka, MJ Hahn, RB Woodbury, SC Hull… - Genetics in …, 2020 - Elsevier
Abstract Meaningful engagement of Alaska Native (AN) tribes and tribal health organizations
is essential in the conduct of socially responsible and ethical research. As genomics …

[HTML][HTML] Engaging Native Americans in genomics research

RS Malhi, A Bader - American anthropologist, 2015 - ncbi.nlm.nih.gov
Native North American groups have rarely been included in population-based genetic
studies (Need and Goldstein 2009; Reich et al. 2012). 3 The tumultuous history of …

Genomic research and American Indian tribal communities in Oklahoma: learning from past research misconduct and building future trusting partnerships

JQ Chadwick, KC Copeland, DE Branam… - American journal of …, 2019 - academic.oup.com
Research misconduct and consequential harms have been inflicted upon American
Indian/Alaska Native communities for decades. To protect their people and culture and to …

Recruiting indigenous patients into clinical trials: a circle of trust

AG Mainous, A Kelliher, D Warne - The Annals of Family …, 2023 - Annals Family Med
The Circle of Trust is a new conceptual model that can help investigators and the American
Indian/Alaska Natives (AI/AN) community work together to promote inclusion of AI/AN …

Partnering in research: a national research trial exemplifying effective collaboration with American Indian Nations and the Indian Health Service

JQ Chadwick, KC Copeland, MR Daniel… - American journal of …, 2014 - academic.oup.com
Despite the fact that numerous major public health problems have plagued American Indian
communities for generations, American Indian participation in health research traditionally …