As genomic researchers are encouraged to engage in broad genomic data sharing,
American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions …

Indigenous Peoples have historically been targets of extractive research that has led to little
to no benefit. In genomics, such research not only exposes communities to harms and risks …

Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …

Amid the rapid growth of precision medicine and biobanking initiatives, there have been few
efforts at cataloging the implications of these initiatives for Indigenous communities. A …

Genomic research raises unique ethical concerns among Alaska Native and American
Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous …

The data-sharing policies of the National Institutes of Health aim to maximize public benefit
derived from genetic studies by increasing research efficiency and use of a pooled data …

Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …

Genomic science represents a new frontier for health research and will provide important
tools for personalizing health care. Biospecimen-based research is an important mechanism …

Purpose Amid calls for greater diversity in precision medicine research, the perspectives of
Indigenous people have been underexplored. Our goals were to understand tribal leaders' …

There is limited information about what African Americans think about biobanks and the
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …