Background: Multiple factors, including experiences with unethical research practices, have
made some Indigenous groups in the United States and Canada reticent to participate in …

Purpose Against a historical backdrop of researchers who violated trust through lack of
benefit sharing, transparency, and engagement, efforts are underway to develop better …

Introduction Indigenous Peoples are increasingly exerting governance and oversight over
genomic research with citizens of their nations, raising questions about how best to enforce …

There is increasing potential to improve the research and reporting on the health and
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …

Globally, there is a growing acknowledgment of Indigenous Peoples' rights to control data
related to their communities. This is seen in the development of Indigenous Data …

Genetic datasets lack diversity and include very few data from Indigenous populations.
Research models based on equitable partnership have the potential to increase Indigenous …

BACKGROUND: Genetic research has potential benefits for improving health, such as
identifying molecular characteristics of a disease, understanding disease prevalence and …

It has been several decades since the establishment of Ownership, Control, Access, and
Possession (OCAP®) and the proliferation of work on Indigenous research ethics. Most of …

Genetics research has the potential to improve health care. American Indians (AIS) suffer
from significant health disparities, including significantly higher incidence and prevalence of …

Research misconduct and consequential harms have been inflicted upon American
Indian/Alaska Native communities for decades. To protect their people and culture and to …