A Venn diagram of vulnerability: The convergence of pediatric palliative care and child maltreatment a narrative review, and a focus on communication

CB Rothschild, BH Chaiyachati, KR Finck… - Child abuse & …, 2022 - Elsevier
Child maltreatment and end-of-life care independently represent two of the most emotion-
laden and uncomfortable aspects of pediatric patient care. Their overlap can be uniquely …

Balancing protection and progress in pediatric palliative care research: Stakeholder perspectives

K Mooney-Doyle, KA Pyke-Grimm, AF Lanzel… - …, 2022 - publications.aap.org
Pediatric palliative care, including end-of-life care, remains a relatively new area of
interdisciplinary clinical practice and research. Improving the multifaceted and complex care …

Ethical issues around pediatric death: navigating consent, assent, and disagreement regarding life-sustaining medical treatment

S Barone, Y Unguru - Child and Adolescent Psychiatric …, 2018 - childpsych.theclinics.com
In modern society, we expect parents to outlive their children. Childhood death is a difficult
reality, in part, because it defies the expected order of life events, challenging basic …

Suffering in children at the end of life: recognizing an ethical duty to palliate

J Wolfe - The Journal of Clinical Ethics, 2000 - journals.uchicago.edu
DISCUSSION Personal characteristics and values always influence the integration of
information, an unavoidable form of bias. The impact of this bias, however, may not be …

Pediatric palliative care: the time has come

N Hutton - Archives of Pediatrics & Adolescent Medicine, 2002 - jamanetwork.com
WE ARE RIDING on the crest of mi-raculous advances in the diagno-sis and treatment of
numerous diseases and debilitating conditions. Pediatric health care providers are caught …

Response to suffering of the seriously ill child: a history of palliative care for children

BA Sisk, C Feudtner, M Bluebond-Langner… - …, 2020 - publications.aap.org
Most pediatric clinicians aspire to promote the physical, emotional, and developmental well-
being of children, hoping to bestow a long and healthy life. Yet, some infants, children, and …

Goals, values, and conflict resolution

C Strong, C Feudtner, BS Carter… - Palliative care for …, 2004 - books.google.com
Few tasks in pediatrics are as challenging as caring for children with lifethreatening or
terminal conditions. This challenge, unfolding over the course of a particular child's care …

The struggle between protecting children from and preparing them for the death of their parent: A qualitative study

R Millar, M Bell, L Casey - American Journal of Hospice and …, 2023 - journals.sagepub.com
Objectives The aim of this study was to gain a greater understanding of communicating with
children about parental terminal illness from the perspective of the surviving parents …

Children at the intersection of pediatric palliative care and child maltreatment: a vulnerable and understudied population

RW Cleveland, C Ullrich, B Slingsby… - Journal of pain and …, 2021 - Elsevier
Context Concerns for child maltreatment can complicate the provision of pediatric palliative
care (PPC). Little is known about the vulnerable population of children with life-threatening …

Relational suffering and the moral authority of love and care

GD Campelia, JC Kett, A Wightman - Philosophical Investigations into the …, 2022 - Springer
Suffering is a ubiquitous yet elusive concept in health care. In a field devoted to the pursuit of
objective data, suffering is a phenomenon with deep ties to subjective experience, moral …