Effects of a telehealth early palliative care intervention for family caregivers of persons with advanced heart failure: the ENABLE CHF-PC randomized clinical trial

JN Dionne-Odom, DB Ejem, R Wells… - JAMA network …, 2020 - jamanetwork.com
Importance Family caregivers of persons with advanced heart failure perform numerous
daily tasks to assist their relatives and are at high risk for distress and poor quality of life …

Educate, nurture, advise, before life ends comprehensive heartcare for patients and caregivers (ENABLE CHF-PC): study protocol for a randomized controlled trial

R Wells, ML Stockdill, JN Dionne-Odom, D Ejem… - Trials, 2018 - Springer
Background Palliative care is specialized medical care for people with serious illness that is
focused on providing relief from symptoms and stress and improving the quality of life (QOL) …

Effect of an early palliative care telehealth intervention vs usual care on patients with heart failure: the ENABLE CHF-PC randomized clinical trial

MA Bakitas, JN Dionne-Odom, DB Ejem… - JAMA internal …, 2020 - jamanetwork.com
Importance National guidelines recommend early palliative care for patients with advanced
heart failure, which disproportionately affects rural and minority populations. Objective To …

Using patients and their caregivers feedback to develop ENABLE CHF-PC: an early palliative care intervention for advanced heart failure

I Akyar, JN Dionne-Odom… - Journal of palliative …, 2019 - journals.sagepub.com
Objective: Models of early, community-based palliative care for individuals with New York
Heart Association (NYHA) class III/IV heart failure and their families are lacking. We used the …

Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial

M Bakitas, JN Dionne-Odom, SV Pamboukian… - BMC palliative …, 2017 - Springer
Background Early palliative care (EPC) is recommended but rarely integrated with advanced
heart failure (HF) care. We engaged patients and family caregivers to study the feasibility …

The impact of an integrated early palliative care telehealth intervention on the quality of life of heart failure patients: a randomized controlled feasibility study

A Mirshahi, M Bakitas, M Khoshavi… - BMC Palliative Care, 2024 - Springer
Background While palliative care for patients with heart failure has gained global attention,
in Iran most palliative care interventions have focused only on cancer patients. The purpose …

Nurse and social worker palliative telecare team and quality of life in patients with COPD, heart failure, or interstitial lung disease: the ADAPT randomized clinical trial

DB Bekelman, W Feser, B Morgan, CH Welsh… - JAMA, 2024 - jamanetwork.com
Importance Many patients with chronic obstructive pulmonary disease (COPD), heart failure
(HF), and interstitial lung disease (ILD) endure poor quality of life despite conventional …

The effectiveness of telehealth care on caregiver burden, mastery of stress, and family function among family caregivers of heart failure patients: a quasi-experimental …

LC Chiang, WC Chen, YT Dai, YL Ho - International journal of nursing …, 2012 - Elsevier
BACKGROUND: Telehealth care was developed to provide home-based monitoring and
support for patients with chronic disease. The positive effects on physical outcome have …

Health Coaching Improves Outcomes of Informal Caregivers of Adults With Chronic Heart Failure: A Randomized Controlled Trial

B Riegel, R Quinn, KB Hirschman… - Circulation: Heart …, 2024 - Am Heart Assoc
BACKGROUND: Caring for someone with heart failure takes an emotional and physical toll.
Engaging in self-care may decrease stress and improve the health of informal caregivers …

Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review

J Nicholas Dionne-Odom, SA Hooker, D Bekelman… - Heart failure …, 2017 - Springer
Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid
support from a family member or friend. Although HF and palliative care practice guidelines …