Sense of Coherence in partners to persons with Huntington's disease

M Karlstedt, U Winnberg… - Acta Neurologica …, 2021 - Wiley Online Library
Objectives Huntington's disease (HD) is a progressive neuropsychiatric disease
characterized by involuntary movements and behavioural symptoms. This study aimed to …

[HTML][HTML] “I Wouldn't Even Know What to Ask for”: Patients' and Caregivers' Experiences of Psychological Support for Huntington's Disease in Italy

N Zarotti, B D'Alessio, M Scocchia, M Casella… - NeuroSci, 2024 - mdpi.com
People with Huntington's disease (HD) often experience psychological difficulties linked with
disease progression and the adjustment to living with a chronic condition, which are also …

G03 The hold me tight relationship program for couples facing huntington's disease

L van der Meer - 2021 - jnnp.bmj.com
Background A positive predictive genetic test for Huntington's disease (HD) can be a life-
changing event for both carriers and their partners. The risk for relational problems may be …

[HTML][HTML] Is there a relation between caregiver burden and cognitive dysfunction in Huntington's disease?

MM Schumacher-Kuiper, AM van Loon… - Journal of Psychosocial …, 2021 - Springer
Caring for a family member with Huntington's disease (HD) can be seriously burdensome.
Cognitive and neuropsychiatric symptoms that are part of HD can impact the quality of life of …

[HTML][HTML] Families affected by huntington's disease report difficulties in communication, emotional involvement, and problem solving

CMH Jona, I Labuschagne… - Journal of …, 2017 - content.iospress.com
Background: Family functioning in Huntington's disease (HD) is known from previous studies
to be adversely affected. However, which aspects of family functioning are disrupted is …

[图书][B] Emotional functioning in Huntington's disease patients and its relation to caregiver experience

D Krch - 2008 - search.proquest.com
Huntington's disease (HD) is an inherited, neurodegenerative disorder characterized by
progressively worsening abnormalities of movement, cognition, and behavior. Although …

Living with Huntington's disease: illness perceptions, coping mechanisms, and spouses' quality of life

DI Helder, AA Kaptein, GMJ Van Kempen… - International Journal of …, 2002 - Springer
Chronic illness not only affects the life of those suffering from Huntington's disease but also
threatens the quality of life (QOL) of their spouses. In this study, we focus on Huntington's …

Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients' well‐being

DI Helder, AA Kaptein… - British Journal of …, 2002 - Wiley Online Library
Objectives: To describe the illness perceptions and coping mechanisms of patients with
Huntington's disease (HD), and to assess their role in the well‐being of these individuals …

[HTML][HTML] Self-Reported Social Relationship Capacities Predict Motor, Functional and Cognitive Decline in Huntington's Disease

P Lemercier, L Cleret de Langavant… - Journal of personalized …, 2022 - mdpi.com
Huntington's Disease (HD) is an inherited neurodegenerative disease characterized by a
combination of motor, cognitive, and behavioral disorders. The social and behavioral …

Profiling Social Cognition in Premanifest Huntington's Disease

K Turner, D Bartlett, SA Grainger, C Eddy… - Journal of the …, 2022 - cambridge.org
Objective: Discrepancies exist in reports of social cognition deficits in individuals with
premanifest Huntington's disease (HD); however, the reason for this variability has not been …