Genetic testing has gained traction in the media with the recent Pentagon ban and
continuing increases in public consumption of at-home tests. Public discourse surrounding …

Susan M. Wolf, JD, is McKnight Presidential Professor of Law, Medicine & Public Policy;
Faegre Baker Daniels Professor of Law; Professor of Medicine; and Chair of the Consortium …

The advent of new genetic and genomic technologies may cause friction with the principle of
respect for autonomy and demands a rethinking of traditional interpretations of the concept …

This chapter discusses the important role that informed consent plays in healthcare and
medical research involving genetic testing. The requirement of informed consent for …

Genetic research often utilizes or generates information that is potentially sensitive to
individuals, families, or communities. For these reasons, genetic research may warrant …

The collection and use of human genetic data raise important ethical questions about how to
balance individual autonomy and privacy with the potential for public good. The proliferation …

Informed consent is a vital ethical doctrine in clinical medicine and, through genetic
counselling, is being applied to genetic testing. But genetic testing raises issues that …

Genetic research often utilizes or generates information that is potentially sensitive to
individuals, families, or communities. For these reasons, genetic research may warrant …

There is an established consensus in clinical ethics around the position that genetic testing
of children is morally justified only when there are important medical benefits to be obtained …

Broad genome‐wide testing is increasingly finding its way to the public through the online
direct‐to‐consumer marketing of so‐called personal genome tests. Personal genome tests …