Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences

R Couvrette, É Milot, G Fortin - Journal of Social Work in End-of …, 2024 - Taylor & Francis
In developed countries, there has been an increase in the longevity of adults with intellectual
disabilities. In the later stages of their lives, people with intellectual disability have specific …

The challenges of providing palliative care for people with intellectual disabilities: a literature review

S Dunkley, R Sales - International Journal of Palliative …, 2014 - magonlinelibrary.com
People with intellectual disabilities are often marginalised from mainstream health-care
services because of the complexities of their disability. They are under-referred to specialist …

People with intellectual disabilities at the end of their lives: The case for specialist care?

R Forrester‐Jones, JK Beecham… - Journal of Applied …, 2017 - Wiley Online Library
Background People with intellectual disabilities have a shorter life expectancy, but
healthcare improvements mean that they are beginning to live longer, with associated health …

Agency, social and healthcare supports for adults with intellectual disability at the end of life in out‐of‐home, non‐institutional community residences in Western …

TT Moro, TA Savage, S Gehlert - Journal of Applied Research …, 2017 - Wiley Online Library
Background The nature and quality of end‐of‐life care received by adults with intellectual
disabilities in out‐of‐home, non‐institutional community agency residences in Western …

Meeting the end of life needs of older adults with intellectual disabilities

P McCallion, M McCarron… - … innovative practice in …, 2012 - books.google.com
Palliative care for adults with intellectual disabilities has come to the fore as an issue only in
recent years. This was and to some extent continues to be a largely hidden population in …

The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review

E Adam, KE Sleeman, S Brearley, K Hunt… - Palliative …, 2020 - journals.sagepub.com
Background: There is evidence that people with intellectual disabilities experience
healthcare inequalities, including access to specialist palliative care, but to date, there has …

Literature review of best health and social care practices for individuals with intellectual disabilities encountering the end of life

A Sterling Welch… - Nursing and Palliative Care, 2016 - gala.gre.ac.uk
This Literature Review (LR) aimed to identity what were care best practices for individuals
with intellectual disabilities (ID) encountering the end of life. Five EBSCOhost academic …

End of Life Care for People with an Intellectual Disability a Qualitative Exploration of Staff Carers' Experiences

M McCarron, P McCallion, E Burke, F Timmins - 2021 - researchsquare.com
Background: Although people with intellectual disability are increasingly living longer and
experiencing high levels of multiple co-morbidity, palliative care has received limited …

End‐of‐life care and dying: issues raised by staff supporting older people with intellectual disability in community living services

M Wiese, RJ Stancliffe, S Balandin… - Journal of Applied …, 2012 - Wiley Online Library
Background The aim of this study was to explore the current status of end‐of‐life care and
dying of people with intellectual disability based on the experiences of staff in community …

Preserving self in the face of death and dying: a grounded theory of end-of-life care needs of people with intellectual disabilities

K Cithambaram - 2017 - doras.dcu.ie
INTRODUCTION There is evidence to show that people with intellectual disabilities receive
poor and inconsistent care at end of life, and that inclusion of people with intellectual …