Health-related quality of life among children, young people and adults with esophageal atresia: a review of the literature and recommendations for future research

M Dellenmark-Blom, JE Chaplin, V Gatzinsky… - Quality of Life …, 2015 - Springer
Purpose Esophageal atresia (EA) is a rare congenital malformation requisite of surgical
treatment. Survival rates have significantly increased in recent decades, but treated children …

Health-related quality of life in patients after repair of esophageal atresia: a review of current literature

M Dellenmark-Blom, J Quitmann… - European Journal of …, 2020 - thieme-connect.com
Patients born with esophageal atresia (EA) require advanced reconstructive surgery and risk
long-term digestive and respiratory morbidity. We describe the state of current literature on …

Long-term outcomes and health-related quality of life in a Swiss patient group with esophageal atresia

A di Natale, J Brestel, AA Mauracher… - European Journal of …, 2022 - thieme-connect.com
Introduction Surgical treatment of esophageal atresia (EA) has markedly improved, allowing
the focus to shift from short-term complications and mortality to long-term complications and …

Generic health-related quality of life after repair of esophageal atresia and its determinants within a German–Swedish cohort

S Flieder, M Dellenmark-Blom, S Witt… - European Journal of …, 2019 - thieme-connect.com
Aim Despite advances of outcomes of esophageal atresia (EA), knowledge on patients'
health-related quality of life (HRQoL) is sparse. Due to the heterogeneity of EA, larger …

Quality of life assessment in esophageal atresia patients: a systematic review focusing on long-gap esophageal atresia

SPT Tanny, A Comella, JM Hutson, TI Omari… - Journal of Pediatric …, 2019 - Elsevier
Background Children born with esophageal atresia (EA) have inherent abnormalities in
esophageal motility which may impact upon patient and family Quality of Life (QoL) …

Development and validation of a condition-specific quality of life instrument for adults with esophageal atresia: the SQEA questionnaire

CA Ten Kate, NM Teunissen… - Diseases of the …, 2023 - academic.oup.com
The importance of multidisciplinary long-term follow-up for adults born with esophageal
atresia (EA) is increasingly recognized. Hence, a valid, condition-specific instrument to …

Congenital esophageal atresia—surgical treatment results in the context of quality of life

A Rozensztrauch, R Śmigiel… - European Journal of …, 2019 - thieme-connect.com
Introduction Esophageal atresia (EA) is one of the most frequent congenital malformations of
the gastrointestinal tract. The aim of the study was to assess surgical treatment results in the …

Health-related quality of life in adult patients with esophageal atresia—a questionnaire study

A Koivusalo, MP Pakarinen, P Turunen… - Journal of pediatric …, 2005 - Elsevier
BACKGROUND/PURPOSE: Long-term sequelae caused by associated anomalies or
respiratory and gastrointestinal disorders are common after the repair of esophageal atresia …

Health-related quality of life experiences among children and adolescents born with esophageal atresia: development of a condition-specific questionnaire for …

M Dellenmark-Blom, JE Chaplin, V Gatzinsky… - Journal of Pediatric …, 2016 - Elsevier
Abstract Background/Purpose The aims were to present the framework for the development
a condition-specific health-related quality-of-life (HRQOL) questionnaire for children with …

[HTML][HTML] Feasibility, reliability, and validity of the Turkish version of the esophageal-atresia-quality-of-life questionnaires to assess condition-specific quality of life in …

T Soyer, UE Arslan, ÇU Durakbaşa… - The Turkish Journal …, 2021 - ncbi.nlm.nih.gov
Background: This study reports the feasibility, validity, and reliability of the Turkish versions
of the Esophageal-Atresia-Quality-of-Life (EA-QOL) questionnaires, which were originally …