G03 The hold me tight relationship program for couples facing huntington's disease

L van der Meer - 2021 - jnnp.bmj.com
Background A positive predictive genetic test for Huntington's disease (HD) can be a life-
changing event for both carriers and their partners. The risk for relational problems may be …

The hold me tight program for couples facing huntington's disease

TM Petzke, M Rodriguez-Girondo… - Journal of …, 2022 - content.iospress.com
Background: A positive predictive genetic test for Huntington's disease (HD) can be a life-
changing event for both carriers and their partners, leading to lower wellbeing and …

[HTML][HTML] Families affected by huntington's disease report difficulties in communication, emotional involvement, and problem solving

CMH Jona, I Labuschagne… - Journal of …, 2017 - content.iospress.com
Background: Family functioning in Huntington's disease (HD) is known from previous studies
to be adversely affected. However, which aspects of family functioning are disrupted is …

H51 Huntington partner in balance: an online self-management program for caregivers of people with Huntington's disease

M Daemen, L Boots, A Duits, M Oosterloo, M de Vugt - 2022 - jnnp.bmj.com
Background and aims Caring for a person with Huntington's Disease (HD) and maintaining
one's own activities in everyday life becomes more and more challenging as the severity of …

Relationship satisfaction and sexuality in Huntington's disease

E Reininghaus, N Lackner - Handbook of Clinical Neurology, 2015 - Elsevier
Huntington's disease (HD) is a chronic disabling disease that inflicts a considerable burden
on patients and their families for a variety of reasons. These reasons include cognitive …

Couples' experiences of predictive testing and living with the risk or reality of Huntington disease: a qualitative study

F Richards - American journal of medical genetics Part A, 2004 - Wiley Online Library
A qualitative study, based on family systems theory, was undertaken in order to gain a better
understanding of the impact of predictive testing and of living with the risk or reality of …

H50 'We must live as if he was not ill': an interpretative phenomenological analysis of spouses' experience facing Huntington's disease

M Mégane, C Manceau, E Constant, É Decorte… - 2022 - jnnp.bmj.com
Background Huntington's disease (HD) is a rare autosomal dominant hereditary
neurodegenerative disorder that causes motor, cognitive and behavioural symptoms. As the …

Couples' coping in prodromal Huntington disease: A mixed methods study

NR Downing, JK Williams, AL Leserman… - Journal of genetic …, 2012 - Springer
Huntington disease (HD) includes a prodromal phase with behavioral, cognitive, and motor
function decline occurring up to 15 years prior to diagnosis. This study used mixed methods …

Pilot investigation into the need and feasibility of a psychoeducation and support group for male caregivers of those with Huntington's disease

SL Velissaris, R Hosken, C Gluyas - Journal of Community Genetics, 2021 - Springer
The psychosocial sequelae of caregiving in Huntington's disease (HD) have been shown to
be extensive, even in comparison with other progressive neurological disorders. Based on …

[HTML][HTML] The Impact of Huntington's Disease on Mental Health

L Ferluga - synapticure.com
May is a significant month for both Mental Health Awareness and Huntington's Disease (HD)
Awareness, with May 15th dedicated specifically to raising awareness about HD. For many …