[HTML][HTML] Is there a relation between caregiver burden and cognitive dysfunction in Huntington's disease?
MM Schumacher-Kuiper, AM van Loon… - Journal of Psychosocial …, 2021 - Springer
Caring for a family member with Huntington's disease (HD) can be seriously burdensome.
Cognitive and neuropsychiatric symptoms that are part of HD can impact the quality of life of …
Cognitive and neuropsychiatric symptoms that are part of HD can impact the quality of life of …
Impact on couple relationships of predictive testing for Huntington disease: a longitudinal study
F Richards, K Williams - … Journal of Medical Genetics Part A, 2004 - Wiley Online Library
Since predictive testing has been available for Huntington disease (HD) and similar adult‐
onset neurodegenerative disorders, research into the psychosocial impact of test results has …
onset neurodegenerative disorders, research into the psychosocial impact of test results has …
Evaluating a genetic counseling narrative group session for people who have tested positive for the Huntington's disease expansion: An interpretative …
Huntington's disease (HD) is an inherited neurodegenerative disorder characterized by
motor problems, cognitive impairment, and mood disturbances. Given the emotional …
motor problems, cognitive impairment, and mood disturbances. Given the emotional …
H46 The uncertainty of waiting: assessing the impact of the first Spanish meeting for premanifest and potential carriers of Huntington's disease
F Júlio, A Arnesen, R Blanco, B De Schepper… - 2022 - jnnp.bmj.com
Background The European Huntington Association (EHA) promoted the first event in Spain
dedicated to premanifest and potential carriers of Huntington's Disease (HD). 52 individuals …
dedicated to premanifest and potential carriers of Huntington's Disease (HD). 52 individuals …
H14 End-of-life converstations with patients with huntington's disease
L Schippers, I Kienstra, L van Dusseldorp - 2021 - jnnp.bmj.com
Background In the last years of life patients with Huntington's Disease (HD patients) usually
live in a nursing home, where the Primary Caregiver or Nurse (EVV) is responsible for …
live in a nursing home, where the Primary Caregiver or Nurse (EVV) is responsible for …
Profiling Social Cognition in Premanifest Huntington's Disease
Objective: Discrepancies exist in reports of social cognition deficits in individuals with
premanifest Huntington's disease (HD); however, the reason for this variability has not been …
premanifest Huntington's disease (HD); however, the reason for this variability has not been …
Psychological functioning before predictive testing for Huntington's disease: the role of the parental disease, risk perception, and subjective proximity of the disease
M Decruyenaere, G Evers-Kiebooms… - Journal of medical …, 1999 - jmg.bmj.com
BACKGROUND Psychometric testing of participants in predictive DNA testing for
Huntington's disease (HD) has shown that 15% of the subjects at risk for HD had at least …
Huntington's disease (HD) has shown that 15% of the subjects at risk for HD had at least …
Stress in Huntington's Disease: Characteristics and Correlates in Patients and At-Risk Individuals
ALB Snow, AE Ciriegio, KH Watson… - Journal of …, 2024 - content.iospress.com
Background: Huntington's disease (HD) is a neurodegenerative disease that presents
families with significant numbers of stressful events. However, relatively little empirical …
families with significant numbers of stressful events. However, relatively little empirical …
Couples' attributions for work function changes in prodromal Huntington disease
NR Downing, JK Williams, JS Paulsen - Journal of genetic counseling, 2010 - Springer
People who have tested positive for the expanded Huntington disease (HD) gene who are
not yet diagnosed (pre-HD) and their companions report subtle changes in ability of people …
not yet diagnosed (pre-HD) and their companions report subtle changes in ability of people …
Marriage as protector for nursing home admission in Huntington's disease
JY Winder, WP Achterberg… - Journal of Huntington's …, 2018 - content.iospress.com
Background: Huntington's disease is a progressive, incurable neurodegenerative disorder
and it is not possible to delay onset or progression of the disease. Consequently, the …
and it is not possible to delay onset or progression of the disease. Consequently, the …