End-of-life care supports and decision-making practices in specialist intellectual disability residential services

C Dalton - 2019 - cora.ucc.ie
Background: Over the past 50 years, the profile of people with intellectual disability (ID) has
changed because they are living longer with a wide range of co-morbid conditions, which …

End-of-life care in intellectual disability: a retrospective cross-sectional study

K Hunt, J Bernal, R Worth, J Shearn… - BMJ Supportive & …, 2020 - spcare.bmj.com
Background Adults with intellectual disability (ID) experience inequality in access to
healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at …

[PDF][PDF] End of life care for people with intellectual disability: a retrospective cross sectional UK study

J Bernal, E Jones, P Madden, D Wales - Age, 2020 - academia.edu
Background: Adults with intellectual disability (ID) experience inequality in access to
healthcare that is considered to extend to end of life care. Their experiences of healthcare at …

End-of-life care and dying: choices and needs of people with intellectual disability and their carers

M Wiese, S Balandin… - Journal of …, 2008 - researchdirect.westernsydney.edu …
Although some progress has been made toward providing choices about home based end-
of-life care and dying to the aged in the general community, the same opportunities are not …

End‐of‐life decisions: an important theme in the care for people with intellectual disabilities

A Wagemans… - Journal of …, 2010 - Wiley Online Library
Background While end‐of‐life decisions in the general population have received attention in
several countries, not much is known about this in people with intellectual disabilities (IDs) …

End-of-life decisions for people with intellectual disability–a Swiss survey

MT Wicki, A Hättich - International Journal of Developmental …, 2017 - Taylor & Francis
Objectives: The aim of this study was to explore the prevalence and nature of end-of-life
decisions for people with disabilities in Swiss residential homes and determine their …

The ELCIDD project: an audit of end‐of‐life care in persons with intellectual disabilities and dementia

S Tromans, H Andrews, A Wani… - Journal of Policy and …, 2019 - Wiley Online Library
With a rise in the life expectancy of people with intellectual disabilities in recent decades,
there has been a related increase in rates of dementia. As a chronic, progressive condition …

'To move or not to move': A national survey among professionals on beliefs and considerations about the place of end‐of‐life care for people with intellectual …

N Bekkema, AJE De Veer… - Journal of …, 2015 - Wiley Online Library
Background The aim of this article was to investigate the beliefs and considerations of
professionals concerning an appropriate environment for end‐of‐life care for people with …

Agency, social and healthcare supports for adults with intellectual disability at the end of life in out‐of‐home, non‐institutional community residences in Western …

TT Moro, TA Savage, S Gehlert - Journal of Applied Research …, 2017 - Wiley Online Library
Background The nature and quality of end‐of‐life care received by adults with intellectual
disabilities in out‐of‐home, non‐institutional community agency residences in Western …

End‐of‐life care policies in Flemish residential care facilities accommodating persons with intellectual disabilities

I D'haene, HRW Pasman, L Deliens… - Journal of …, 2010 - Wiley Online Library
Objective This article aims to describe the presence, content and implementation strategies
of written policies on end‐of‐life decisions in Flemish residential care facilities (RCFs) …