[HTML][HTML] Sickle cell anemia in Cuba: Prevention and management, 1982–2018

B Marcheco-Teruel - MEDICC review, 2019 - SciELO Public Health
women who were carriers and those with SCD during its first 20 years, which led to
unnecessary test repetition on multiparous pregnant women; an inadequate genetic counseling

Long-term health outcomes following curative therapies for sickle cell disease

R Chakravarthy, DL Friedman - Hematology, 2022 - ashpublications.org
… -term health outcomes for gene therapyReproductive dysfunction is a well-established
complication of SCD; however, HSCT can also lead to complications related to reproductive health

[PDF][PDF] The Role of Parents: Strengthening Adolescent Education for Sickle Cell Disease Prevention

EI Obeagu, GU Obeagu - Elite Journal of Public Health, 2024 - academia.edu
… , genetic counseling, and educational strategies on shaping positive health behaviors among
at-… to make informed choices that influence their reproductive and health-related decisions.…

Curative therapies for sickle cell disease

K Khemani, D Katoch, L Krishnamurti - Ochsner Journal, 2019 - ochsnerjournal.org
… Background: Sickle cell disease (SCD) is an inherited hemoglobinopathy associated with …
study of lentiglobin gene therapy for severe sickle cell disease. Blood . 2016;128(22):1176. …

[PDF][PDF] Men's Essential roles in the Management of Sickle Cell Anemia

EI Obeagu, GU Obeagu, MC Igwe… - … Journal of Scientific …, 2023 - researchgate.net
sickle cell anemia, or those who are carriers of the sickle cell trait, can encourage their family
members and partners to seek genetic counselingwomen and men with sickle cell disease: …

Fertility preservation for pediatric patients with hemoglobinopathies: Multidisciplinary counseling needed to optimize outcomes

BS Bedrick, TP Kohn, LH Pecker… - Frontiers in …, 2022 - frontiersin.org
fertility preservation counseling and treatment an important part of the contemporary
comprehensive patient care. Sickle cell disease … uncomfortable discussing reproductive health

Barriers to pediatric sickle cell disease guideline recommendations

MD Cabana, J Kanter, AM Marsh… - … Pediatric Health, 2019 - journals.sagepub.com
sickle cell anemia about hydroxyurea (HU) therapy and screen children with sickle cell anemia
… We surveyed a national convenience sample of sickle cell disease clinicians to assess …

[HTML][HTML] Initial outcomes in a sickle cell disease transition clinic

K Madrazo-Aguirre, JA Ribeil, AE Sobota - Health Care Transitions, 2024 - Elsevier
… Patients asked for advice on types of jobs suited to their disease and in one case the … and
reproductive issues, to school and employment questions. The fact that reproductive health

The crisis of sickle cell disease in Africa from insights into primary prevention in Ghana and Nigeria: Notes from the field

MO Ezenwa, JA Dennis-Antwi, CM Dallas… - … and Minority Health, 2021 - Springer
counselling is crucial for informed family planning, health experts in Ghana and Nigeria
believe genetic reproductive … is to foster better informed reproductive health behaviors. This is …

Optimal disease management and health monitoring in adults with sickle cell disease

J Howard, SL Thein - Hematology 2014, the American Society …, 2019 - ashpublications.org
… In women whose disease severity is alleviated by HU and are not able to receive blood
transfusion, clinicians may consider ongoing HU therapy during pregnancy, with provision of …