… In biobank research, this emphasis on more active forms … governing data, to share ideas
and perspectives on data and tissue use, and to improve the governance of research biobanks (…

… to a biobank versus the commercial entity that runs the biobank. In … and debates around
research governance and public … , diverse needs and perspectives on biomedical research and …

… biobank governance to achieve trust in biobanks through accountability, transparency, and
control – is essential. Aceti (2016) add that genetic variation can have significant impact on …

… technologies, the role and forms of biobank research have been constantly changing. The
ethical, legal, and social implications of consent in biobank research are in a state of flux. This …

… LM-5: I think that it is important that someone from outside monitors (the biobank). Because
of a broader perspective (…). They could use a checklist to ensure that everyone follows the …

… Additionally, appropriate biobank governance was also considered by the scholars as a
trustworthy framework to counter the shortcomings of the informed consent process – particu…

… The CHM Biobank's vision and goals are aligned to address a national … biobank. This review
provides a brief overview of the literature on the challenges and benefits of an RD biobank …

… This positive outlook is argued from three perspectives, each of which is significant in
defining the current, and ongoing, legitimacy and utility of broad consent under the GDPR: the …

… ’ activity should be founded on multifaceted perspectives that … is a pillar of the UPO Biobank
governance chart (Figure 2) … of UPO Biobank activities, aims, and future perspectives. The …