biobanking and genomnks research in Sub-Saharan Africa

K Wahabd, A Akpalue, FS Sarfof, LF Owolabi… - 2022 - HeinOnline
… regulating genomics research and biobanking; and any form of delegated legislation as
regulations, this article examines how genomics research and stroke biobanking in SSA can be …

The ethical and legal landscape of brain data governance

P Ochang, BC Stahl, D Eke - Plos one, 2022 - journals.plos.org
… with data governance and provides a theoretical perspective to … biomedical institutions such
as biobanks do not offer clear … public in general as part of their governance practices [A 46]. …

A leap of faith: building the trust in human biobanks

Y Zhang, B Liao, R Lei - Frontiers in Genetics, 2023 - frontiersin.org
Background: Human biobanks are an essential resource for … Public trust in human biobanks
is a vital social prerequisite … public trust and human biobanks and the process through which …

At a moment's notice: community advisory board perspectives on biobank communication to supplement broad consent

KM Meagher, SH Curtis, KO Gamm, EJ Sutton… - Public health …, 2020 - karger.com
… The study findings we report here reflect one set of community perspectives on biobank
communication with individual contributors at the moment of individual sample distribution. …

The Skeleton in the closet: Faults and strengths of public versus private genetic biobanks

P Tozzo, L Caenazzo - Biomolecules, 2020 - mdpi.com
… In the public sector, instead, the biobanks only seem to represent an expense in the health
institutions’ budget. A shift from a donor-only perspective to a customer-donor perspective

Biobanking in LMIC settings for infectious diseases: Challenges and enablers

S Ezzat, R Biga, Z Kozlakidis - Biosafety and health, 2022 - mednexus.org
… Thus, the further development of infrastructure facilities, including biobanks is warranted
as … This perspective manuscript summarises the challenges and enablers for biobanking in …

A preliminary study to explore the informed consent approach and the ethical challenges in the Malaysian biobanking for Research

A Azahar, AN Mohd Yusof, ZI Azhar - Asian bioethics review, 2023 - Springer
… This study also found that the conduct of biobanking research might be different among
the biobanks as some of the biobanks followed international guidelines such as ISBER for …

[PDF][PDF] Assessment of knowledge, concerns and support of physicians towards biobanks in Pakistan, and their willingness to donate

M Ahsan, ZA Rana, M Ali, K Anwer - SPR, 2021 - academia.edu
… A major component of bio bank governance is the development of stakeholder interaction
… Stakeholders' perspectives on bio bank-based genomic research: systematic review of the …

Mini-gut feelings: perspectives of people with cystic fibrosis on the ethics and governance of organoid biobanking

MA Lensink, SN Boers, VA M Gulmans… - Personalized …, 2021 - Future Medicine
… ethical and governance challenges of organoid biobanking. To explore their perspectives,
we … responsible, ethically sound governance of organoid biobanks in precision medicine that …

An imagined future community: Taiwan Biobank, Taiwanese genome, and nation-building

YY Tsai, WJ Lee - BioSocieties, 2021 - Springer
… Building on these perspectives, we will shed light on the complicated and intriguing relationship
between national biobanks and national identity in particular, and science and politics in …