[HTML][HTML] Advancing clinical and translational research in germ cell tumours (GCT): recommendations from the Malignant Germ Cell International Consortium
A Fonseca, J Lobo, FK Hazard, J Gell… - British journal of …, 2022 - nature.com
… biobanks would complement the efforts already made and would provide an invaluable
resource. In our view, such comprehensive GCT biobanks … the ideal global biobank to further this …
resource. In our view, such comprehensive GCT biobanks … the ideal global biobank to further this …
[PDF][PDF] Assessment of knowledge, concerns and support of physicians towards biobanks in Pakistan, and their willingness to donate
M Ahsan, ZA Rana, M Ali, K Anwer - SPR, 2021 - academia.edu
… A major component of bio bank governance is the development of stakeholder interaction
… Stakeholders' perspectives on bio bank-based genomic research: systematic review of the …
… Stakeholders' perspectives on bio bank-based genomic research: systematic review of the …
Achieving procedural parity in managing access to genomic and related health data: a global survey of data access committee members
J Lawson, V Rahimzadeh, J Baek… - … and biobanking, 2024 - liebertpub.com
… affiliated with genomic data repositories worldwide to understand standard processes and
procedures, operational metrics, bottlenecks, and efficiencies, as well as their perspectives on …
procedures, operational metrics, bottlenecks, and efficiencies, as well as their perspectives on …
Trans-border transfer of human biological materials in collaborative biobanking research: Perceptions and experiences of researchers in Uganda
ES Mwaka, IG Munabi - medRxiv, 2022 - medrxiv.org
… biobank governance in Uganda. They have also highlighted pertinent trust issues in collaborative
biobanking … a better understanding of the biobank governance in Uganda so as to offer …
biobanking … a better understanding of the biobank governance in Uganda so as to offer …
[HTML][HTML] Stakeholder engagement to ensure the sustainability of biobanks: a survey of potential users of biobank services
C Klingler, M von Jagwitz-Biegnitz, R Baber… - European Journal of …, 2022 - nature.com
… if the perspectives of potential users of biobanks—particularly researchers not yet collaborating
with biobanks—are adequately considered. To better understand their perspectives, a …
with biobanks—are adequately considered. To better understand their perspectives, a …
[HTML][HTML] Perceptions, attitudes, and willingness of the public in low-and middle-income countries of the Arab region to participate in biobank research
M Ahram, F Abdelgawad, SA ElHafeez… - BMC medical …, 2022 - Springer
… Regarding public perspectives with participating in biobank research, studies performed
in LMICs from the Arab Middle East region, specifically Egypt, Jordan, and Morocco, have …
in LMICs from the Arab Middle East region, specifically Egypt, Jordan, and Morocco, have …
[HTML][HTML] Governing personalized health: A scoping review
… Genetic data stored in biobanks is key to the development of PH services. Already for some
… the diffusion of biobank initiatives concerning PH holds: “Biobanking services must improve …
… the diffusion of biobank initiatives concerning PH holds: “Biobanking services must improve …
[HTML][HTML] Revolutionizing cancer research: the impact of artificial intelligence in digital biobanking
C Frascarelli, G Bonizzi, CR Musico, E Mane… - Journal of Personalized …, 2023 - mdpi.com
… trend is substantiated by a growing body of scientific literature that underscores the significance
of these biobanks … adopt AI in healthcare with a more positive and thoughtful perspective. …
of these biobanks … adopt AI in healthcare with a more positive and thoughtful perspective. …
Legal Implications of Stroke Biobanking and Genomics Research in Sub-Saharan Africa.
… In this article, the legal implications of stroke biobanking and genomics research in SSA are
examined. The legal issues are mainly presented from the generalist perspective of common …
examined. The legal issues are mainly presented from the generalist perspective of common …
Biobanks for aging research-perceptions and choices among rheumatology outpatients.
JV Cordeiro, CA Lopes, PL Faria… - Acta Reumatológica …, 2021 - search.ebscohost.com
… acting as mere donors, patients can and should be involved in structured and harmonised
national and international biobanking activities72,73 as their voice and perspective can be a …
national and international biobanking activities72,73 as their voice and perspective can be a …